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Tag: MS

Should I take Ocrevus?

Should I take Ocrevus?

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If your doctor has suggested Ocrevus you are certainly moving up the ladder of disease modifying drugs for multiple sclerosis. With each of the IV drugs especially come side effect risks. Ocrevus is no exception. The most serious they show is: Risk of cancers (malignancies) including breast cancer. Follow your healthcare provider’s instructions about standard screening guidelines for breast cancer. That’s a pretty serious risk to consider. They also talk about PML Progressive Multifocal Leukoencephalopathy. This is the brain infection caused…

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An elusive molecule that sparks Multiple Sclerosis article from Science Magazine

An elusive molecule that sparks Multiple Sclerosis article from Science Magazine

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A very interesting article found on the web from Science Magazine written by Mitch Leslie. This article has been copied below. https://www.sciencemag.org/news/2018/10/elusive-molecule-sparks-multiple-sclerosis-may-have-been-found Our immune cells normally pounce on intruding bacteria and viruses. But in multiple sclerosis (MS), immune cells target the nervous system instead. Now, researchers may have pinpointed a long-sought molecule called a self-antigen that provokes these attacks, pointing a way toward potential new treatments. “The work is monumental, and it’s tantalizing,” says neuroimmunologist Hartmut Wekerle of the Max…

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Tired

Tired

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Not fatigued, yet, but I have physical therapy so give it time. The weather is so wacky and I think that’s why. One day it’s cold, rainy 65 degrees and I’m wearing a sweatshirt. The next day it’s 75 and humid and I’m in shorts. My hair is frizzy again in the middle of October. Amazingly I haven’t had migraines. An absolute blessing. I haven’t had one in at least a month (knock on wood). I’d think with these wacky…

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Ocrevus colds prevention tips and natural oils

Ocrevus colds prevention tips and natural oils

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The sneezing started last night. I am starting my regiment of Doterra Oregano and OnGuard today. Hopefully I could knock it out before it starts. I take Ocrevus so common colds can take longer to leave my system but since I started with the natural oils I’ve been very fortunate not to have that issue. I wrote a lot of information about the oils in this post https://multipleexperiences.org/2018/09/15/schools-back-reminder-about-oils-doterra/ or check out my page https://multipleexperiences.org/doterra-oils/. The common cold could put you…

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Accepting the stages of MS

Accepting the stages of MS

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I’ve been looking to get funding for a handicap vehicle for the past few months. It hasn’t gone as well as i was hoping. On top of this my own car is a lease which isn’t over until July 2019. My mother kind of yelled at me for getting ideas in my head prematurely. She isn’t wrong but what I needed to explain to my mom that it wasn’t so much the idea of the handicap vehicle it was the…

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Biking for a World Free MS

Biking for a World Free MS

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https://www.facebook.com/donate/249027742420824/ Why We Want to Create a World Free of MS 9! years ago, when I said I wanted to ride 30 Miles for an MS Bikeathon, my step-but-real sister Jamie said “I can barely walk 300 feet – why do they do these events that people with MS could never do?” I said “Maybe it’s because we hope someday you’ll be able to.” I have done this event for 9 years now. Life is harder for Jamie, but I’m…

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Season change and MS symptoms

Season change and MS symptoms

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Does the change of seasons affect your MS symptoms? I know that the actual seasons affect symptoms like the heat of summer or the cold of winter but I mean the transition between the seasons. I’ve had a tough time with my walking lately and with fatigue. My physical therapist says season change. I found this article online http://tamingmultiplesclerosis.com/multiplesclerosis-seasonchangesarticle.html. Usually I feel effects of season changes maybe from winter to spring. It’s unusual for me to feel this way from…

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Life coaching for people with a chronic illness

Life coaching for people with a chronic illness

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Sometimes it is overwhelming dealing with a chronic illness and navigating through daily life. I know I’ve lived there. I use to unleash it all on my mom. She has so much empathy and I adore her but she doesn’t have multiple sclerosis and she didn’t, she couldn’t, fully understand. I was sad for a long time until I changed my thinking and changed my perception on life. I have a life coach that helps me stay on track and…

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Neurological doctor appointment today

Neurological doctor appointment today

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I see my neuro who I’ve been seeing now for over 20 years. These appointments always seem to upset me. Not the doctor, the reality of my disease. It isn’t that I don’t understand multiple sclerosis or I don’t know the current research, I like to think I am somewhat current on the disease. It is more going to a doctor and leaving with the knowledge that your not going to get better. It’s very silly actually because I know…

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Ocrevus infusion side effect gone better than past medicines I took

Ocrevus infusion side effect gone better than past medicines I took

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Good morning. I’m happy to report I am finally feeling better. I actually started feeling a little better on Saturday. I went swimming and was able to still get around my condo without having that bone feeling fatigue. So it took about 6 days for me to start feeling better. By Sunday I was good. It was a tough week but I don’t have to worry about the infusion again until March. I can handle that. I remember when I…

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