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Tag: MS

MS fall frustration

MS fall frustration

It’s Sunday and I usually post a song or a recipe. I kind of take the day off with the blog. However today I’m gonna write a quick post about falling. I still fall a lot. I walk with a walker all the time but I still have moments that I can explain I just lose balance. I was on the side of my bed, cleaning up my dog area, my bed and the wall right next to me and…

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My 20 year anniversary with multiple sclerosis

My 20 year anniversary with multiple sclerosis

It just dawned on me, that February 14 was my 20 year anniversary with MS. It was the weekend of February 14 that I was moving it to my house with my ex-husband. My left leg started to feel numb. The numbness started traveling up my leg through my muscles. I wasn’t just numb, my muscles were becoming week and atrophied. It was The following Friday I went to a family doctor who sent me immediately to this neurologist. To…

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My day in the emergency room

My day in the emergency room

I’m putting on my shoes to go to the doctor about the swelling that’s going on in my lower legs, ankles and feet. I noticed that maybe the right one looked a little less swollen, but I put my shoes on anyway so I can go to the doctor. When I got to the doctor a game plan was almost already in place before she even looked down at my feet. She touch my feet, she looked at the rapid…

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Swollen extremities…now what?

Swollen extremities…now what?

Going to the doctor tomorrow. Let’s see what this is all about. My whole weekend I was away my feet were swelling. My mom said it’s because of the airplane. I don’t know, it might be. I flew down Thursday night could barely get my shoes on every day I was down in Florida and then I flew home Monday. I just think my shoes were tight before this but I’m not sure. It certainly wasn’t as bad. My aide…

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Me and my MS got along well on vacation

Me and my MS got along well on vacation

You have to be thankful for the small things. I’m grateful that my multiple sclerosis “issues” were handled effectively for my stay in Florida, despite the heat. I know both my dad and stepmom are nervous. They aren’t around me daily and the symptoms of my MS scare them. It’s more the fears of the falls I think. I did fall but neither of them were in their presence. One was me once again sliding off the toilet. What’s with…

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The calming effect of water

The calming effect of water

I’m the first one up. I’m sitting listening to the stillness of the house but also watching the complete stillness of the water. It was my dad who gave me my love of the water. At an early age taking me out on the boat. We never fished. Most of the time didn’t even have a destination, just went. My favorite of his boats was a yellow speedboat he owned. I remember being in the cabin with my little sister,…

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Partly sunny humid Florida

Partly sunny humid Florida

It’s a little warm in Florida. Great for most people, not so much for this MS patient. I purposely come down in January or early February because the weather is great. 70 something by day 60 something by night. Not this trip. It’s 80 degrees and a little humid down here. At night it’s a cooling 78. I realized no way could I do my Beachbody exercise program. The house is too hot and outside is too hot. I said…

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Physical therapy and exercise with MS

Physical therapy and exercise with MS

It’s that day again…Monday. It comes quickly, doesn’t it? It starts my week to even though I don’t go to work anymore. I start each Monday with physical therapy again. Let me explain physical therapy. Physical therapy is like exercise. I hate it, but I know it’s important and it helps. Therefore I do it with a smile each time. You know those endorphins you are supposed to get when you work out? In the eight years I worked out…

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Blogging everyday

Blogging everyday

I don’t know why I blog every day. I don’t know where I put it in my head that each day I was going to put in an entry. I think at some point it became so cathartic for me that I wanted to blog every day because I was working through so much shit. Now I find that sometimes I really don’t have much to add. I sometimes wonder if I’m putting almost pressure on myself to submit a…

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Patting myself on the back

Patting myself on the back

Go me!!!! My aid couldn’t come today, so I couldn’t go to the pool. I guess I could’ve asked my daughter to come with me, she would have, but I didn’t want to bother her. Instead I got my Beachbody programs on my TV and I did my workout. I haven’t done my Beachbody workouts probably since July, thanks to the shoulder tendinitis. I always refused to let MS tell me what I couldn’t do and amazingly it was my…

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