My birthday is in 2 days. November 22. I haven’t paid much attention to it with everything else going on, could you blame me? It’s tough to go through and pack 11 years worth of stuff. It’s tougher when you have MS. I could hire people to pack and move for me but that’s a lot of money, so I’ve been doing a little each day with my aide. I have only so much stamina in me each day so…
It’s a dreary day today. It’s raining outside. My apartments all dark except for the light of my iPad. That’s OK, I don’t have much going on except for packing. I’ve been talking so much about my new place I haven’t talked much about MS. I finally was able to see my physical therapist to get some exercises for when I fall and there’s nothing around me to help me get up. I’m on the physical therapy maintenance program so…
Last night I went back to the condo for the first time since we put the offer in, which was back in September. The first question my Mom asked is do you still love it, the answer was absolutely. I’m so excited it is so gorgeous. The first thing I did was walk over to the balcony and look outside and I was not disappointed. The view is even better than my picture show. Her cat was sleeping on one…
My apartment I’m living in has already been rented. A nice woman came yesterday and immediately left a deposit. First person to see the place. No going back now. Well hopefully we close before December 31st otherwise I’m homeless. I know we will but it still made my mother and I a little nervous. This other woman is putting notice on her apartment with her landlord so it’s like a ripple effect. Work done in the condo or not, I…
Now that I’m moving, I have to pack. I went from my house to an apartment. It was a lot of downsizing. Now I’m going from an apartment to a condo. So I have to downsize again. I thought it was hard moving from a three bedroom house with a full dining room, living room, kitchen and den into a two bedroom apartment. Now I have to go from a two bedroom apartment with a huge living room, kitchen, crawlspace,…
I’m so excited to finally write this post. I’m moving!!! After 11 years in this apartment, 21 years in the same town, I’m leaving. My mom and step dad bought me a condo in a neighboring town. It has two bedrooms and two bathrooms. For the first time ever in my life I will have my own bathroom. I will have no more stairs. I am located right off the elevator. I have a pool, fitness room, and tennis court….
When I was at my doctor the other day, I was explaining some of my symptoms. I thought I possibly my optic neuritis was acting up. My very first MS symptoms was optic neuritis. It was in my right eye and it was like a huge sunspot in my field of vision. I had it once very mildly in my left eye, same thing but much less intense. I believe I had one other issue in my right eye over the…
I received a comment yesterday, on an older blog, about my Ocrevus infusion. What I found interesting is she’s had multiple sclerosis for 36 years and she’s first going on a disease modifying therapy. First of all I have to say, 36 years within any DMT, that is amazing!!! I know other people like that or that have stopped taking any of the disease modifying therapy drugs for a variety of reasons. I never had that option. My multiple sclerosis…
If you’ve never read my blog before, I invite you to look through the search box and find my numerous posts on biotin. If you don’t want to take my word, this is an article from the web with the doctor who has been conducting the clinical studies on high dose biotin in multiple sclerosis. https://multiplesclerosisnewstoday.com/2017/05/09/medday-new-phase-3-trial-and-belief-in-biotin-potential-to-treat-progressive-ms-interview-with-frederic-sedel/ My MS doctor had read the notes on the clinical studies and started me on biotin back in December of 2016. With biotin being a…
Going to the neurologist are usually a bittersweet day. I really like my neurologist in the city, she is a wonderful doctor. I honestly couldn’t ask for more compassionate, caring and understanding for MS. That being said, there’s limits to what could be done for me. Since seeing her regularly I’m on my third MS drug that I started back in September, which is Ocrevus. I can say that I was on Rituxan prior to this and the changes only…
