Hopefully I am through the worst of it now. Yesterday was pretty bad. I believe my exact words to my mom were, “I am four breaths shy of death”. There wasn’t a spot on my body that didn’t hurt. It’s a good thing these infusions happen every six months because you have plenty of time to forget. I can even go back and look at past blog posts and see exactly how I felt. However, it’s a little different each…
My infusion scheduled for March 17. I’ve been on many of the disease modifying MS drugs over my 23 year span with the disease. Betaseron still holds the record of 12 years but that also has to do with the drugs that were available when I first got diagnosed. I have been on either Rituxan or Ocrevus since 2016. I group these two drugs together for very specific reasons, they are fundamentally the same. The biggest difference is Rituxan is…
I was at my primary care physician yesterday because I have a cut on my shin that is infected. I had antibiotics in the house and I started to self medicate and it wasn’t really working so I got an appointment. She prescribed a stronger antibiotic and a cream but thankfully it wasn’t cellulitis or any further issue that needed more care. This was my fault. I knew it was infected for a while. My Zoey never left that spot…
Another Friday is here. I don’t know if it’s because I’m getting older or because I don’t do much but these weeks go so fast. I’m not bored Most days I’m amazed at how fast the day went. I use to say the days go slow but the years go fast. Now it seems everything is speeding on by. My daughter is 21. She’s a senior in college. That alone is enough to shock me. However in an old draw…
I think I’m through the worst of the infusion side effects now, more or less. I didn’t have the greatest weekend. By the end of the days my legs felt very weak. I did sleep on my chair both nights. Thankfully I did because Saturday night, without my water pill, I was still up every two hours to use the bathroom. My legs would have been too weak to get me up and down into my bed. I made the…
Is summer over yet? I’m ready to put on my oversized sweatshirt. It doesn’t matter that I stay indoors with AC the humidity penetrates to my bones. I know this question was asked by Steve over at MSich Chronicles http://msichchronicles.blog/2020/07/29/evansville-heat/, but how do people with MS live in hot, humid places? I’m in countdown mode until I can officially say its Fall. Right around the time of my next Rituxan infusion. For any new readers, I switched back to Rituxan…
On Wednesday I was feeling something itching me under me right breast. I looked many times but didn’t see anything. I was on high alert looking for blister under my breasts. I was very concerned over a repeat episode of the side effects that happened last September. https://multipleexperiences.org/2019/09/17/blisters-on-breast/?preview=true&frame-nonce=b3345af611. When my aid looked on Thursday she was able to see a few little bumps in the area like a rash. We used a little Neosporin on the area. Last night I…
Another day at home except this time I’m like many others in the world. Welcome to my life. This is definitely the time to binge TV, read a book or 8 and maybe start a jigsaw puzzle. I’m hanging with my puppies, in my chair, gazing at the water and listening to the construction still going on near my condo. It’s comforting to know that things haven’t stopped completely with this virus. I am still feeling tired from my Rituxan…
I’m happy to report that I have no blisters today. I had three little red marks last night that looked almost like welts. This morning I only saw one. I can’t even begin to tell you the relief that was for me. I will be able to continue Rituxan until something better comes along. That isn’t the greatest statement but it is better than the alternative of putting me on a drug that might not work for me. The infusion…
Well I canceled my therapy until further notice. After my blogs last week Not liking physical therapy PT like it or not…, you’d think I’d be happy making this decision but I really wasn’t. I’m not trying to be overly dramatic about the Coronavirus but I am trying to be smart. In therapy I can name fifty surfaces or more I touch that someone else has touch seconds before. They do not sanitize every surface in between patients. It is…
