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Tag: rituxan side effects

Time goes by quickly and slowly

Time goes by quickly and slowly

Another Friday is here. I don’t know if it’s because I’m getting older or because I don’t do much but these weeks go so fast. I’m not bored Most days I’m amazed at how fast the day went. I use to say the days go slow but the years go fast. Now it seems everything is speeding on by. My daughter is 21. She’s a senior in college. That alone is enough to shock me. However in an old draw…

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Starting to feel more like myself

Starting to feel more like myself

I think I’m through the worst of the infusion side effects now, more or less. I didn’t have the greatest weekend. By the end of the days my legs felt very weak. I did sleep on my chair both nights. Thankfully I did because Saturday night, without my water pill, I was still up every two hours to use the bathroom. My legs would have been too weak to get me up and down into my bed. I made the…

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End of summer marks next Rituxan infusion

End of summer marks next Rituxan infusion

Is summer over yet? I’m ready to put on my oversized sweatshirt. It doesn’t matter that I stay indoors with AC the humidity penetrates to my bones. I know this question was asked by Steve over at MSich Chronicles http://msichchronicles.blog/2020/07/29/evansville-heat/, but how do people with MS live in hot, humid places? I’m in countdown mode until I can officially say its Fall. Right around the time of my next Rituxan infusion. For any new readers, I switched back to Rituxan…

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A blister formed after Rituxan infusion again

A blister formed after Rituxan infusion again

On Wednesday I was feeling something itching me under me right breast. I looked many times but didn’t see anything. I was on high alert looking for blister under my breasts. I was very concerned over a repeat episode of the side effects that happened last September. https://multipleexperiences.org/2019/09/17/blisters-on-breast/?preview=true&frame-nonce=b3345af611. When my aid looked on Thursday she was able to see a few little bumps in the area like a rash. We used a little Neosporin on the area. Last night I…

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Welcome to my world

Welcome to my world

Another day at home except this time I’m like many others in the world. Welcome to my life. This is definitely the time to binge TV, read a book or 8 and maybe start a jigsaw puzzle. I’m hanging with my puppies, in my chair, gazing at the water and listening to the construction still going on near my condo. It’s comforting to know that things haven’t stopped completely with this virus. I am still feeling tired from my Rituxan…

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Rituxan infusion successful

Rituxan infusion successful

I’m happy to report that I have no blisters today. I had three little red marks last night that looked almost like welts. This morning I only saw one. I can’t even begin to tell you the relief that was for me. I will be able to continue Rituxan until something better comes along. That isn’t the greatest statement but it is better than the alternative of putting me on a drug that might not work for me. The infusion…

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Decisions to isolate

Decisions to isolate

Well I canceled my therapy until further notice. After my blogs last week Not liking physical therapy PT like it or not…, you’d think I’d be happy making this decision but I really wasn’t. I’m not trying to be overly dramatic about the Coronavirus but I am trying to be smart. In therapy I can name fifty surfaces or more I touch that someone else has touch seconds before. They do not sanitize every surface in between patients. It is…

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Rituxan infusion coming up

Rituxan infusion coming up

Good morning and happy hump day to all. Got through the day of exhaustion from therapy yesterday. At least I had a justifiable reason for being fatigued. I even made it to my hair appointment and no more grey hairs, at least for the next 5-6 weeks. My wonderful hair dresser, who is also a good friend, even blew out my hair for me saving me a step so I didn’t have to deal with it myself. I’m almost due…

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Wednesday update

Wednesday update

First an update from the blisters and Rituxan Blisters and Rituxan. Doctor wants me to start washing all my clothes in free and clear detergents. I really could have called that one. She wants to rule out allergic reaction to any detergent regardless how long I’ve been using it. I get that understandable but the bras I’ve been wearing lately are actual bras. Like with the clasp bras. Bras I gave up on years ago because my hands can’t do…

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Blisters and Rituxan

Blisters and Rituxan

I am at my doctor’s office for an appointment that has been canceled twice. Checking on those blisters that are still appearing under my breast. Blisters on breast. Allergic reaction to Rituxan. Originally deemed an allergic reaction to Rituxan because they appeared within hours of doing the infusion, they are still appearing. My neurologist was the only person who didn’t think it was a reaction to Rituxan even though it said specifically on the Rituxan site: https://www.rituxan.com/patient/starting-rituxan/rituxan-safety-information.html Severe Skin and…

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