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Tag: Rituxan

Not a smooth transition to Ocrevus

Not a smooth transition to Ocrevus

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OCREVUS (Ocrelizumab) is the new approved drug for the treatment of patients with relapsing or primary progressive forms of multiple sclerosis.  I’ve been on Rituxan, the sister drug to Ocrevus, for over a year. The comparison on the drugs is mostly illustrated in my blog post here… I made the error thinking same company, basically same drug, easy transition….NOT!!! Last Friday I found out that my infusion place that I was receiving the Rituxan from, WILL NOT be doing Ocrevus…

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Doctors, doctors and more doctors

Doctors, doctors and more doctors

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I’ll start this with the doctor for my shoulder tendonitis. I went to see him yesterday. Still flying high from my amazing weekend at my spirit junkie master class, I think I even put the doctor in a good mood.  Being that my case is slightly different from other tendonitis cases, I can’t ever rest the arm because I use it with the walker, he was able to give me a Cortizone shot early. He was actually singing as he injected…

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MS neurological doctor visit

MS neurological doctor visit

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Doctors, doctors and more doctors. I have a lot of appointments coming up.  Yesterday I was saw my neurologist. He’s been the doctor I’ve been with the longest, the one who diagnosed me 19+ years ago. At this stage of the game with my MS he treats me systematically. The specialist in the city treats me for my major MS drug. This is a section from a my own blog about doctor day check ups. It’s doctor day. What does that…

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Blogging my online journal

Blogging my online journal

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It’s another Monday, how did that happen? So today I was thinking, I wasn’t in the mood to blog. Then I realized I’ve blogged every day since I started the blog in July. Yes, sometimes I cheat and I put up song lyrics like yesterday, but come on Linkin Park rocks, it was meaningful.  Sometimes I put up recipes but let me tell you the Vegan Oatmeal Chocolate Chip Cookies https://multipleexperiences.org/2017/04/08/vegan-oatmeal-chocolate-chip-cookies/ freaking rock, made them again yesterday. Or my highest traffic…

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High dose biotin for MS month 6

High dose biotin for MS month 6

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I just finished my six month taking high dose biotin. I’m taking 300mg per day as was done in the MS clinical trial. You have to get this higher dosage from a specialty pharmacy. I get mine from Ace Pharmacy online. I was hoping to have a link on my side bar from Ace pharmacy, but I we haven’t linked up yet. This is the website. https://highdosebiotin.net/about-us/ You can call and speak to them, the people there are extremely knowledgable and…

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neurological check-up, mentally preparing, Ocrelizumab, MRI

neurological check-up, mentally preparing, Ocrelizumab, MRI

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Let me first address the fact that it took an hour and 45 minutes to get into the city for my check up. That means I’m doing nothing for all that time. I was her first appointment that morning. When we do my neurological checks and timed walking, I’m at the best I’m going to be. Therefore the check up is based on this point. However how realistic is it? This is the first time I was her first appointment,…

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7 reasons why I decided to put Ocrelizumab (Ocrevus) back on the table

7 reasons why I decided to put Ocrelizumab (Ocrevus) back on the table

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Yesterday the approval was made for Ocrelizumab for multiple sclerosis. If you don’t have access to the Internet, a newspaper , listen to the news, watch the news, have a friend, or a loved one, or possibly live under a rock, you might not of heard.  This drug has been showing promise and talked about for a long time now. I’ve actually been angry at all the buzz this drug has been getting., The reason why is because I’ve been…

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My current list of medications for my MS

My current list of medications for my MS

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With any chronic Illness, I think our medicine cabinet becomes a small pharmacy. I thought I’d give a list of what I am taking for my multiple sclerosis, the dosage and the reason. I’ve included links to my other posts if I have information that I thought was useful on a particular drug or vitamin. This post is an added plus for me. I can print and give to doctors instead of rewriting each drug I take on their medical…

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High dose biotin going on 5 months patient thoughts

High dose biotin going on 5 months patient thoughts

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http://sumo.ly/moZo I submitted a link to the biotin research/clinical study that showed that it may be helpful in people with progressive forms of multiple sclerosis. I am writing from my own perspective from taking the medicine. this excerpt is from a past blog post of mind explaining what my doctor has noticed  I get a 100mg pill I take 3 times a day from Ace pharmacy https://highdosebiotin.net . I just completed my 4th month somewhere in the middle of my…

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I hate insurance companies

I hate insurance companies

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Here we go again. Another battle with the insurance. After I went to through the the battle with them and filed every appeal possible for my Rituxan, I was denied. Insurance denied saying it was not approved for multiple sclerosis. Although we filed all the necessary paperwork and they did approve it for others they would not approve it on my case. What is more than frustrating and this is that the new drug that is coming out for MS,…

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