During my treatment yesterday, there was a man sitting next to me that I started talking to. The conversation started after he had to take a phone call and felt bad that he thought he was disrupting his neighbor. He apologize for the call and explained his brother-in-law was going in for triple bypass surgery today. He was sitting next to me getting Chemotherapy. I politely explain no need for apologies, I totally understood . From there we…
Most doctor’s do two rounds two weeks apart and then you repeat every 6 months. It will be the same senario as when I posted the first time https://multipleexperiences.org/2017/01/16/rituxan-infusion-day/. I feel bad for Zoey, the 5 month old puppy, today because no one is around and she has to be in her crate for 6+ hours. I feel bad for me because Zoey will have a lot of energy when I get home. Maybe it’s Marshmellow, my 8 year old frenchie,…
Unfortunately, I have not escaped side effect free from my Rituxan infusion on Monday. However it’s not the Rituxan that is the problem it’s the steroid, as I figured it might be. Definitely not as bad as last time but I definitely don’t feel well. So instead of a long blog I got humor this morning with my puppy Zoey that I thought I’d share. Zoey loves socks doesn’t matter if they are on your feet or not. This morning…
As expected I was extremely tired after. It’s because of the large amount of Benadryl that is given. I was in bed asleep by 9:00. I’d love to say that was unusual for me, but during the week that’s my normal bed time. I woke up with a little stomach ache. That can be a number of reasons but it is listed as a side effect of the rituxan. I don’t remember it from any of the other times I…
Third time I’m being infused with Rituxan. I was able to change my infusion place back to my home town instead of NYC. Saves at least 3 hours of the day. I got here at 9am and it’s 9:57 IV is just beginning. Why an hour? Well they didn’t get the doctors orders. Now it is a federal holiday today so getting in touch with the doctor wasn’t going to be easy. Her office at Mount Sinai in NYC is…
Look at my last few weeks…I was gearing up for the holidays, got this puppy, go away for Christmas, my beloved dog Boomer died, I spiral into a complete depression, cried everyday for a week plus but my multiple sclerosis symptoms are relatively the same. Are they better? No, but they aren’t worse. Multiple Sclerosis isn’t directly linked to stress, but it never failed for me when I’d have high periods of stress, about one month later, BANG MS ISSUES….
I have 2 neurologists. One is a straight neurologist who diagnosed me 18+ years ago and has been with me since. The other is a multiple sclerosis specialist in New York City who I’ve been seeing for about 2-3 years now. Both of them work on different aspects of my MS. My neurologist is usually the symptoms manager. He prescribes the daily drugs I take. The specialist deals with which MS drug I’m on. The blood work, MRI scans and…
Ok first mistake I made I stepped on the scale. I have one of the Fitbit Aria scales. It registers my weight by my name. The increase was so great from my Friday weigh in that the scale listed me as a GUEST because how in 2 days could a change that great happen, but it totally did. 12lb increase from Friday morning to Sunday morning. 12lbs THAT’S FREAKING INSANE. I know it’s not real weight it’s from the infusion…
