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Author: Youtwohearts

A day in the life with multiple sclerosis.
Wasn’t expecting that!!! Snap out of it!!!

Wasn’t expecting that!!! Snap out of it!!!

Wow I was going fast into depression the medicine the braces the $130 for shoes I hated the bad phone call with mom.  I just was so upset cried for hours straight. It just compounds on you sometimes but now add steroids into the mix and presto recipe for a bad situation.  I can’t believe how bad I felt yesterday I really just wanted to give up something that has never been in my nature.  I slept all day today…

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Post rituxan and steroids

Post rituxan and steroids

Ok first mistake I made I stepped on the scale. I have one of the Fitbit Aria scales. It registers my weight by my name. The increase was so great from my Friday weigh in that the scale listed me as a GUEST because how in 2 days could a change that great happen, but it totally did. 12lb increase from Friday morning to Sunday morning. 12lbs THAT’S FREAKING INSANE. I know it’s not real weight it’s from the infusion…

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Heroes get back up

Heroes get back up

Ive been a Humpty Dumpty collector since I was a baby. I’ve had past blogs on my childhood friends. I still sleep with them at the age of almost 45 and I’m not embarrassed. They make me happy and give me a sense of security. After long days and tough battles I’ve stopped apologizing for the little things that put a smile on my face. The picture above was a pin given to me when I was first diagnosed with…

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A week in the life of Multiple Sclerosis

A week in the life of Multiple Sclerosis

A week in my MS world. I already had my rant of distress this week. So far the week has been better but it’s Thursday and I still have a lot going on.  If you have MS maybe you’ve heard of the studies of biotin in high dosages that seem to help people with more progressive stages of the disease.  This study which was done in the US is still small but larger ones have been done in other countries….

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Life is a gift…an email from my dad

Life is a gift…an email from my dad

There was a blind girl who hated herself because she was blind. She hated everyone, except her loving boyfriend.. He was always there for her.. She told her boyfriend, ‘If I could only see the world, I will marry you.’ One day, someone donated a pair of eyes to her. When the bandages came off, she was able to see everything, including her boyfriend. He asked her, ‘Now that you can see the world, will you marry me?’ The girl…

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Hodgepodge post with a side of weigh-in.

Hodgepodge post with a side of weigh-in.

Hi everyone. First I want to thank everyone who reads this. Yesterday I wrote a tough blog post. Actually I wrote the blog Monday night and posted it on Tuesday. I did feel much better yesterday body wise but by the end of the day my body was shot. I woke up this morning made sure my daughter was awake and went back to bed. A first for me. I was definitely sad when I first got up today. Just…

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MS is a tough disease

MS is a tough disease

I don’t like to rant. I try to keep my blog in a positive state of mind but sometimes I just am exhausted. I don’t need to do much anymore without suffering the consequences.  People who haven’t seen me since the day I left my job would be amazed I would think. I have and continue to get worse. Sometimes my hands get so tired I can’t pick up my fork to eat dinner. My legs not only get tired…

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How’d the date go?

How’d the date go?

I guess I should discuss my date. It was good. He was nice funny and we had things in common. Was he exactly my type? No not exactly. The truth in advertising wasn’t exact. Age ✅ height ✅ body type….ummmmm. I being a student of a course in miracles know you can’t look at the clothes we wear aka body but he put average body type and he was a larger boy. I was a little surprised. However weight can…

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September 11, 2001

September 11, 2001

Today there will be no blog. Please take a minute to pray for all those who lost their lives, all the heroes that emerged that day and the people who have fought for our freedom since. Take an extra minute to hug some one, forgive someone and tell someone you love them. Life is short and unpredictable make the most of each day.

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