I’ve said many times that I start to write my blog with one idea and it goes a completely different way. Sometimes the blog writes itself. This is what happened yesterday Summer heat hibernation and my own multiple sclerosis realization. I certainly wasn’t planning on addressing the idea of more aid hours. I’ve pushed back on this, against my family’s concerns, because I need some alone time. It’s probably why I never have a problem being home. I’m with someone…
The quarantine is starting to lift yet this is the weather I start my hibernation. It’s starting to warm up and that means trouble for me and multiple sclerosis. Not just me, many of us. Between 60% and 80% of people with MS find that heat can cause their symptoms to worsen. This might involve a build up of fatigue, blurred vision, loss of balance or a worsening of cognitive symptoms such as concentration or memory. https://www.mstrust.org.uk/a-z/temperaturesensitivity I missed all my good months to…
I had another rough night. This time I was alone. My daughter has been home for two months and the one night she’s out I really needed her. Unfortunately in my exhausted state, I fell. Not only did I fall but I was in a very bad spot. I was now exhausted and helpless. Not a good place to be. I spent a lot of time and energy maneuvering myself into a position of hope. Hope that I could possibly…
This is my recent purchase. It is designed for elderly and people with little mobility. It works by moving you feet in a walking like motion. You can see how it looks from the top of my legs in this video. My legs are definitely moving. They are not going super fast but they are getting movement. I did this for an hour yesterday while I sat and watched TV. I had to stop because the truth was my legs…
When you live with a chronic illness I think you start to hate that question. People ask it all the time but they really don’t want the actual answer. Trust me, we very rarely actually respond with the truth. My go to answer is I’m doing ok. I can’t say good anymore because that is just too much of a stretch. I just answer with a vague I’m doing ok and change the subject, how are you doing? What is…
She only turns 21 once. All I know is my fridge is stocked with alcohol. The main thing she wanted was a bottle of champagne to open on her 21st birthday. Then we took some cute I’m 21 pictures. She wanted a few with me although I was far from dressed for the occasion. This was the last year of her balloons and gift that I sneak in her room on her birthday morning. I’ve been doing this since she’s…
My mood has been dark lately. I miss my dog. I feel alone. It’s been a tough couple of weeks. I received an email yesterday, which was actually my sister’s newsletter. It was entitled Attitude and Gratitude. At the top of the email it actually said thanks Jamie. Truthfully when I first saw it I really thought she personalized it just for me. I honestly thought that even though it was her newsletter, for her business, that the subject matter…
My first social outing since March I was having dinner at my mom and stepdad’s house. It was the first time I was seeing my mom since a quick drive by in the beginning of April. It was the first time I was seeing my sister and brother-in-law since February. We were all getting together to celebrate my daughter’s 21st birthday which is on Wednesday. We were having dinner outside. She has a beautiful backyard but definitely has challenges for…
I’m not sure if my blog has been successfully moved yet. I am still waiting for confirmation but I had good news to share. This is our new puppy: We changed his name to Minx. He is a Panda Pug. The white and black makes him a rare color. We chose him because he will grow to be about 20lbs, doesn’t bark much, has a longer life span than the frenchie and he’s so cute. As much as I would…
