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Author: Youtwohearts

A day in the life with multiple sclerosis.
My muscles are getting weaker

My muscles are getting weaker

I have to be honest, my legs are super tired by the end of the night. I’ve been having some real issues getting myself into bed. Luckily my daughter has been around to assist and readjust my legs. My original thoughts were why? I’m resting most of the day after I exercise. Then it occurred to me, I’m moving even less now than the little I was moving before. This is bad. The more I’m in hibernation, the weaker I’m…

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Cooking Light French Style-Beef Stew

Cooking Light French Style-Beef Stew

I’ve been loving this soup I found on Cooking Light. https://www.cookinglight.com/recipes/french-style-beef-stew. I do make changes that o will note next too either ingredient or steps. Ingredients • 1 tablespoon canola oil 2 1/2 pounds boneless chuck roast, trimmed and cut into 1 1/2-inch pieces *I actually use ground beef and or turkey just easier for me to eat 2 teaspoons black pepper 1 1/2 teaspoons kosher salt 3 1/2 cups sliced yellow onions 1/2 pound carrots (about 4 carrots), peeled…

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My hair is grey and my nails are breaking

My hair is grey and my nails are breaking

Seems everyone is saying the same thing, at least everyone in my age bracket. I don’t care so much about my nails and truthfully I could do my own hair. I just know I’d never match my color so I’ll leave it to the professionals. I’m getting my magic sleek done as soon as this is over anyway and it changes my hair color. Picture makes me laugh. I’m grateful this is what is consuming my mind these days. I’ve…

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Working out with MS disability and weakness

Working out with MS disability and weakness

Good morning. I just finished my LesMills workout. I’ve been doing Sh’bam on there which is cardio dancing stuff. It’s fun but I wish I could be doing some of their other workouts like Grit or Pump but my body’s weakness doesn’t allow for that anymore. I have to revise all workouts I do to a chair. Then I have a problem holding weights. I’ve purchased hand weights that I wear like gloves and use them for all my workouts….

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When will this be over

When will this be over

A sobering thought to the crisis going on in our world. Listening to the governor of New York State yesterday he said it very well, we don’t know. We won’t be waking up to newspapers announcement that the coromavirus has ended. We won’t see people coming out of their homes and hugging each other on the streets. We won’t have pictures memorializing this day in history when the virus ended. Picture from https://www.headforpoints.com/2019/06/09/may-bank-holiday-in-2020-has-been-moved/ This virus ends in stages. A vaccination…

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What a multiple sclerosis spasm looks like

What a multiple sclerosis spasm looks like

Last week I wrote a post about all my different spasms. My multiple sclerosis spasms. I was sitting around yesterday as my right leg was doing the one type of spasm that you could actually see. So I got it on video .img_2066-9 This is why I take so many medicines at night. If I have this spasm while I’m trying to sleep, I won’t. It does happen and incidentally I have many blogs dedicated to my lack of sleep….

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A peaceful weekend

A peaceful weekend

There are a few boats out on the water this morning. It is a still a little chilly but the sun is out. It looks beautiful. I opened windows to let the fresh air in. I just love this!!!! The pictures never do it justice. They never capture the sparkling effect the sun has on the water that I find just mesmerizing. This was better but still doesn’t do it justice. Saturday mornings are my favorite especially when the sun…

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Teleconference neurologist appointment

Teleconference neurologist appointment

I have my neurologist appointment this morning. My second neurologist appointment admits the coronavirus isolation. Once again this will be a teleconference appointment as was my other one. I’m thankful that both my doctors know me so well. What would this be like if I was a new patient or something? I can’t imagine. This appointment was always scheduled as a checkup but now it is also serving as my wheelchair evaluation. I need to be seen by my doctor,…

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The best Passover Seder

The best Passover Seder

Passover last night was one I won’t soon forget. A big thank you to my cousin Stacy and her fiancé Robby for putting it together. There were roughly 27 families connected through Zoom reading the Seder. The new normal of our everyday lives these days. I must give a hysterical shout out to the addition on the 10 plagues of the coronavirus. It was really funny. That detail and the rendition of Dayenu. For over 40 years we’ve sung that…

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How are you doing?

How are you doing?

The numbers of the coronavirus are staggering. I seem to be in the County in New York that has now reported the most cases of the virus and the number is still rising. ALERT: Coronavirus In Nassau: ‘A Staggering Number Of Deaths’ (Tue 1:34:02 PM) ALERT: Nassau Coronavirus Cases By Town: April 8 (Wed 9:27:20 AM) Cuomo: COVID-19 hospitalizations increase on LI Everyday the news is still bleak. I’ve been home for 4 weeks now going out only once I’m…

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