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Author: Youtwohearts

A day in the life with multiple sclerosis.
Back to weight watchers

Back to weight watchers

I’ve done a lot of yo-yo dieting for the last few years. I for the first time started gaining weight in years on my weight watchers Maintainence plan. When I tried to actually do the weight watchers diet I wasn’t losing weight. I went off strict vegan and added fish. I went off vegan completely and tried keto. I went back to strict vegan. I’ve been all over. The only thing I can show for it is another 5lb weight…

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Spiritual session Saturday-when You aren’t forgiven

Spiritual session Saturday-when You aren’t forgiven

We all have a past and no matter how enlightened we may be today, I’m sure at some point in time we’ve hurt someone else. Now we are spiritual and we’ve forgiven all the people that have wronged us, but what about the people we’ve wronged? We could apologize and recognize that part we played in the wrong doing forgiving ourselves for the error of our illusions but the other person may not feel the same. They may not be…

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Happy 49th plus shipping and handling to my sister

Happy 49th plus shipping and handling to my sister

I finally woke up feeling better today. I feel like me. I got up and exercised first thing this morning and it felt really good to sweat. The headache is gone. It has been a full week but I think I’m through the side effects. It is my beautiful sister’s birthday today. She is 50 which I can’t believe because she looks younger than me. She is a kids music and movement teacher. https://m.facebook.com/barikoralfamilyrockband/She has her own YouTube channel with…

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Terrible headaches since Rituxan infusion

Terrible headaches since Rituxan infusion

I have had terrible headaches for three days. Since I have migraines already, I don’t know if the Rituxan made them worse or if it was caused by the infusion but they were bad. I have migraine medicine and I did have to take it. Thankfully I have it because I was in bad shape. Yesterday I took Ibuprofen every 3 hours. It’s been rough. Forgive my brief blog post with my quick update but I’m doing better but still…

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Forks Over Knives Herbed Vegan Matzo Ball Soup

Forks Over Knives Herbed Vegan Matzo Ball Soup

Matzo is one of my favorite things next to the matzo ball. Nothing is better than matzo ball soup on the Jewish holidays and certainly if you aren’t feeling well. Herbed Vegan Matzo Ball Soup Ingredients 5 matzo crackers  1 cup cooked quinoa  1½ tsp ground flaxseeds  1½ tsp lemon juice  ½ tsp garlic powder  ½ tsp onion powder  ½ tsp Italian seasoning  ½ tsp sea salt  3 pinches freshly ground black pepper  ¼ tsp baking soda  1 small onion …

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Short Rituxan post infusion

Short Rituxan post infusion

I had my infusion Friday and today is Tuesday. I woke up not feeling well. I have a bad headache. My body just feels heavy. I am so thankful I had nothing on my schedule because the thought of going out is overwhelming. I’m even taking today as one of my exercise off days because I just can’t. This is the feeling I was concerned with post infusion. Yesterday I felt pretty good although I got very tired very easily….

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How do I feel after Rituxan?

How do I feel after Rituxan?

I had my full dose of Rituxan Friday evening. The weekend was fair. Yesterday, which was Sunday, I didn’t feel well but I think that was more steroid related. Today I woke up and I felt better. I find I fizzle faster. I have gone into bed before 9 both nights and slept well. Even waking up to use the bathroom has been minimal. I have worked out each day refusing to give in to the fatigue but I do…

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Rituxan infusion complete

Rituxan infusion complete

I had my full dose infusion of Rituxan yesterday in my home. Definitely the way to have an infusion. Got my dogs with me for some puppy love, relaxing in my chair and catching up on DVR. The infusion was started very late which was a downside. My nurse had an issue with a prior patient and an infusion that was already scheduled late was now started at 6:30pm. Rituxan, like Ocrevus, is a 5-6 hour infusion so you could…

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An end to a stressful week

An end to a stressful week

Today my van is getting delivered back to me. It seems that the circuit breakers under the floor were water logged. I can’t explain how but the switches needed to be replaced. They kept the car for an extra day testing everything out and hopefully this won’t be a problem again. I am doing my Rituxan infusion later this evening but I am doing at home. That makes a five plus hour infusion so much better. I get to be…

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Hallelujah Rituxan was approved

Hallelujah Rituxan was approved

It was actually approved for my Rituxan infusion. I will be taking it like the Ocrevus and in a full dosage. I know that my doctor has lowered the amount of steroids I need to take prior to the infusion and I will be taking 250mg. Still a high dosage considering prednisone, the oral steroid pill most people take, is normally issued in a step down pack where the highest dosage is a 10mg pill 6 times a day. Just…

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