I’ve had a week to rest since my vacation and I have to say I needed it. I did do my Beachbody Cize workouts every morning. I did get food delivered and cooked. I did reorganize myself,but other than that, I rested. Today I’m going to occupational therapy. This is the easier of the therapies for me because it doesn’t normally wipe me out for the day. I can’t complain my MS symptoms have been somewhat mild this week. Yes,…
I had to share this recipe because it was so good. Might be my new favorite soup from Forks over Knives. Creamy Wild Rice Soup Ingredients 4 cups vegetable stock 1 8oz. pack button mushrooms *I used canned button mushrooms one time and fresh sliced mushrooms another ¾ cup uncooked wild rice 1 leek 4 cloves garlic 1 red bell pepper 1 carrot ¼ tsp sea salt ¼ cup almond flour ¼ cup chickpea flour *I didn’t use stayed with almond flour…
My baby girl left today to go back to college. It was so hard. It was harder this time than it was when she left in August. My house feels really quiet. I know she’s not going to be walking back through the door tonight and I’m so sad. I’m so glad that she loves college. There is nothing I wanted more for her than to have an amazing college experience. She loves Albany most of the time. She’s just…
I received an email yesterday about a new drug for progressive MS called Ocrevus. https://www.cbsnews.com/video/new-drug-provides-hope-for-those-suffering-with-ms/I don’t get it, I’ve been on Ocrevus for almost 2 years already. Is it really still new news? I wish I could rave about this drug that it has done wonders for me, but it hasn’t. I haven’t had any relapses and for that I am thankful but it certainly hasn’t halted my progression. I am worse today than I was two years ago. That…
There was no bad weather in NY that my vacation was cut short. However, today it is 5 degrees with a real feel temperature of negative 15. Yet I’m comfortable and was freezing in Mexico, what was that about? My trip was great but there was things that would have made things easier for me I guess I know now if there is ever a next time. One of my biggest obstacles was the bed. They gave me a step…
I was on vacation. It was my first vacation, other than Florida with family, in years. You can read about it in any of my past weeks blogs. I had to come back early due to the chance of inclement weather in NY. Inclement weather that as of this morning now looks like rain and not snow. I just couldn’t risk not getting home by our anticipated date of Sunday because my daughter is due back at her school to…
Unbelievable but I’m leaving today instead of a Sunday. There is inclement weather in NY for the entire weekend. JetBlue even put on their website that if you were traveling into or from one of the airports they expect will be problems you could change your flight for free. Leaving from Cancun on JetBlue has one flight per day. Every day the planes were just about booked but today or Thursday. My daughter has to get back Tuesday to college…
I fell asleep in the sun yesterday for a short time. I was awoken by my brother in law blocking the sun from me. He was sent by my mom who was scared I was going to fry. Well in typical Jamie fashion my face and chest burned. Today my face has already lost its color and my chest is bright red. Forgive my lack of makeup and frizzy hair. I just got out of the pool and shower shortly…
Those were the words this morning from my mom as she watched me swim in the pool. The pool which was so cold I might add. I was determined to do some laps this morning despite the near frigid temperature. I still swam for roughly a half hour. My mom, the sport she is, got in the frigid water with me so we could walk the pool. This particular pool gets shallow towards the middle and deeper towards the end….
It’s been less than 48 hours that I’ve been on vacation and my multiple sclerosis has not been easy. Half of my clothing I’ve worn so far has been washed due to bladder issues. Not a fun way to start. Really MS, you couldn’t keep that shit together for a few days? I’ve had countless people helping life me feet up small steps or onto golf carts from my family to hotel staff because my legs are far from cooperating….
