Browsed by
Author: Youtwohearts

A day in the life with multiple sclerosis.
It’s pouring

It’s pouring

First day on vacation and it is completely pouring outside. Like monsoon pouring at times. My poor daughter is wearing a sweatshirt and sweatpants trying to stay warm. She’s had a headache all day partly from her cold and partly because of the weather. I’m sneezing now too which isn’t good. I too felt sick and last night I had to sleep in a bathrobe because I was freezing. Not off to the finest first day here but we are…

Read More Read More

Happy 40th Anniversary mom and Jack

Happy 40th Anniversary mom and Jack

I arrived in Mexico yesterday and I must say it is pretty amazing here. Just sending a few quick pictures today to show you where I’m staying. I am living in paradise for a week.

Spiritual session Saturday-In my safety my defenselessness lies

Spiritual session Saturday-In my safety my defenselessness lies

This is one of my favorite lessons from a course in miracles. Lesson number 153. https://acim.org/workbook/lesson-153/ The reason it’s my favorite, because it was the hardest for me to deal with and overcome. I’ve written a couple of blogs on this topic my last one being this one https://multipleexperiences.org/2017/12/21/in-my-defenselessness-my-safety-lies/. Even now three years into a course in miracles, it’s still difficult for me to remember this lesson. I always want to defend myself and defend my actions and it’s a…

Read More Read More

I’m so excited

I’m so excited

It’s finally here a trip that’s been planned for years. It’s a family trip that was supposed to be for everyone’s big birthday celebration. My mom’s 70th, step dad’s 65th and my 45th. Since I just turned 47 you could see that didn’t work out. However now we are celebrating their 40th anniversary and we are leaving Sunday morning for Mexico. One week with my family in a sunny Mexico. I’ve never been there but everyone else in my family…

Read More Read More

Shoes and sneakers

Shoes and sneakers

I have such issues with shoes now. I miss the days I could wear my boots with chunky heels. I never could wear stilettos but I could get away with those. Now I can only wear sneakers or wide shoes that are completely flat. I use to wear Keds sneakers all the time. Quick slip on shoes that I had no issues putting on myself. Now, thanks to swelling that is still unexplained, they are too small. I wear my…

Read More Read More

Spinal Cord Lesions with MS

Spinal Cord Lesions with MS

My neurologist from early on has done MRI’s of my spinal cord. It is where most of my MS activity has been over the last 21 years. My first major attack back in 1998 left a large lesion in my brain but since than it has really all be spinal cord. So what does that mean? Well I asked my doctor the same question. He said spinal cord is why I have no cognitive issues as I’ve progressed. He also…

Read More Read More

A reminder how long I’ve had multiple sclerosis

A reminder how long I’ve had multiple sclerosis

It’s was my routine checkup with my neurologist today. One month shy of my 21st anniversary of my multiple sclerosis diagnosis. This appointment was with the neurologist that made that diagnosis 21 years ago. He knows me well. My folder is very thick and over the years it has been thinned out and moved into storage. Every time I see my file it is a reminder how long my history with this disease has been. 21 years. I ignored it…

Read More Read More

This week at physical therapy-strengthening the core

This week at physical therapy-strengthening the core

I asked in therapy about the issue I had in mahjong last week https://multipleexperiences.org/2019/01/04/couldnt-hold-myself-up/ with holding up myself up. We discussed the issue with my weakened core muscle. I’ve had multiple sclerosis for almost 21 years and it was my core region that was on of the first things effected by MS that never got better. It an area that has always given me issues and has always been an area we work on in therapy. A while ago I…

Read More Read More

Spiritual session Saturday-A Course in Miracles

Spiritual session Saturday-A Course in Miracles

This book has changed my life. I’ve talked about it many times in my blog. You can purchase the book on Amazon very easily or there is an app for the workbook lessons. There are 365 lessons and you do one a day. However today I wanted to share with you an Instagram feed of my life coach who I’ve been with for a few years now. She started on January 1st posting the lessons but more importantly discussing the…

Read More Read More

Couldn’t hold myself up

Couldn’t hold myself up

This wasn’t good. I went to play mahjong for the second time yesterday. It is a game like rummy cube with Asian tiles. Your hands must match to an approved hand on a card. You play with four people around a square table taking turns picking and throwing tiles. Not very strenuous unless you have some type of multiple sclerosis symptom making it difficult. I had that MS symptom. At first I was fine, other than my game itself. However…

Read More Read More

Verified by MonsterInsights