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Tag:  Multiple sclerosis

Important information for Ocrevus and Rituxan patients and the COVID-19 vaccine

Important information for Ocrevus and Rituxan patients and the COVID-19 vaccine

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I had a phone conference with my MS specialist yesterday in New York City. We discussed many things but the most important thing she discussed was the Covid vaccination. She knows that I had already had received both vaccines and of course that I take Rituxan. Rituxan is the older sister drug to Ocrevus. It seems that for people on these drugs, the antibody production for SARS-CoV-2 was reduced compared to other multiple sclerosis drugs. In my doctor’s easier language,…

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Bladder Hesitancy

Bladder Hesitancy

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I’ve written so many blogs about my numerous “accidents” but I never discuss the other way. I actually experience both of them which is why Botox wasn’t an option for me. I dealt with hesitancy long before I dealt with the urgency and the accidents. What is urinary hesitancy mean? If you have trouble starting to urinate or maintaining urine flow, you may have urinary hesitancy. If you ever experienced hesitancy you know how it feels. Your bladder is full,…

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The last of the week trip to urologist Botox for the bladder

The last of the week trip to urologist Botox for the bladder

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It’s Friday, this was such a long week I am very happy to be here. I couldn’t imagine having to work. I’m dreading driving and I only have to go down the block today. This week has definitely been an abnormal week for me. Starting with my traumatizing weekend The horrible weekend tale. Multiple Sclerosis at it’s worst, A new aid My new aide, PT therapy Occupational therapy in my home and today is the urologist. Compared to other weeks,…

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Nobody likes change

Nobody likes change

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After three years, my aid is moving on. She’s changing her hours to work 12 hour shifts each day during the weekend. This way she can make relatively the same hours in less days and be home with her son. With all the uncertainty of the schools new operating hours, who could blame her.  I witnessed firsthand what it was like when she had a homeschool her son. It was hard for every parent but exceptionally hard for someone…

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My cats

My cats

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Not everybody knows this about me, but I had cats before I had a dog. My very first apartment with my soon to be husband, then ex-husband LOL, didn’t allow dogs. I was dying for a pet. One of my employees had a cat that had a litter of kittens and I got my first cat. We named her tipsy because for a cat she wasn’t quite so graceful. She would be walking across the back of the couch and…

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Pajama Day for me

Pajama Day for me

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It is a gray day here. Windy and rainy. I am in my pajamas and planning on staying this way for the remainder of the day. It has been a rough week for me. I ran myself over with my wheelchair No joke, I’ve fallen again Besides my falls, I have literally scratched up every single wall in my house. I guess in my exhaustion, keeping the wheelchair straight also wasn’t one of my strongest abilities. I am physically spent….

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Getting to know a new bathroom floor

Getting to know a new bathroom floor

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I knew I shouldn’t write that about falling. I was playing mahjong yesterday and we were actually playing here in my building. It was one of those days where I was just not holding up very well in the game and I was having difficulties keeping up right. OK, it happens. I wasn’t going to stop playing because I was so happy. I haven’t played in so long. my bladder has been really cooperative and I don’t normally have to…

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Happy New Year to Everyone

Happy New Year to Everyone

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So did you make your New Year’s Resolutions? I don’t make resolutions based on a day in the year but I do have things I’m focusing on in 2020. I’m excited for those tell you about those things. I’m doing Gabby Bernstein’s 21 day manifesting challenge https://gabbybernstein.com/manifestingchallenge/. I’ve never done anything like this and Gabby has never offered anything like this. It starts January 1st so it is like a New Years resolution but I have the ability to access…

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Weighted down

Weighted down

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I almost signed up for Nutrisystem yesterday. Luckily my mom called and I asked her what she thought before I push the button to purchase. She talked me out of it and she made extremely good sense as to why it was pointless. Purchasing pre-portioned, vacuum sealed, preservative induced foods against what I eat normally was extremely dumb.  I eat fresh foods. I make meals from scratch. I don’t eat anything that has been processed. I read labels all…

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