I am very weak. My legs can’t hold me up for long. PT has been working on just getting me up and standing. I never thought something so simple would be so hard. Let me tell you, it is so hard. I try to sway back and forth shifting my weight as I hold onto a walker. I had to sit down again because I have no endurance. One day I was able to get back up once. The other…
I’m better. No more fevers. My breathing is back to normal. I’m completely done with antibiotics. I have no more signs of the pneumonia. Great news. Yes it is. Yet the aftermath is as I expected. I was weakened from being in a bed for 1 1/2 months on top of my multiple sclerosis symptoms worsening. I had no time to adjust to my new body because I was so sick. I wasn’t focusing on my MS while I had…
Today I am getting blood work done. My specialist wants to see a few things. First, my B cell counts. With the hundreds of blood tests I’ve had done in the hospital, that wasn’t done. There was no need to break out the specific white blood cells for a pneumonia. The second thing is my immunoglobulin blood test. I was running very low in the hospital throughout the few months. The pneumonia certainly could be to blame. However, every time…
Yesterday was the last day of the antibiotics. I have been taking a prophylactic drug from the time I got home from the hospital on March 5th. I was taking Atovaquone. This is an anti-fungal, anti-parasite liquid. It is supposed to be banana flavored. I personally would never eat a banana if it tasted like that. This medication is an antibiotic used to treat and prevent pneumonia. It is given to people that can’t take other antibiotics, have HIV or…
Let’s see if I can get back to any regularity writing a blog. When I was in the hospital, i was given a Fiberoptic Endoscopic Evaluation of Swallowing (FESS). My pneumonia was considered to be caused by aspiration. Aspiration pneumonia occurs when food, saliva, liquids, or vomit is breathed into the lungs or airways leading to the lungs, instead of being swallowed into the esophagus and stomach. https://www.mountsinai.org/health-library/diseases-conditions/aspiration-pneumonia When I left the hospital in January my X-ray of my lungs…
I’ve managed to stay home since my last hospital release on March 5th. Please forgive my silence, it has taken me a while to adjust to the new me. I came home and I was still running low grade fevers up until recently. I’d wake up feeling achy most days. It is hard to try to work on strengthening your body when you feel yucky. I truthfully couldn’t get my head in the right space. I know all the positivity…
I last took a Kesimpta shot on January 19. It is now the beginning of March. I had this dilemma of being behind my shot date in January. After Covid and a UTI that put me in the hospital the first time, I needed to be well before I took my shot. That ended up being about 6 weeks after the last shot Kesimpta dosage instruction is every 4 weeks. I’ve never not taken a disease modifying therapy from the…
In the hospital that is. I was home a total of 5 days before I ended up once again in these too familiar surroundings. It started the day after I got home. I actually slid off my bed onto my stool. From there I couldn’t stand up. I had to have EMS come and get me off floor. A great beginning to being home from the hospital. That day I was spent from doing anything else. I never got out…
After 20 days in the hospital I’m happy to say I’m finally going home. I’ve had no fever for the last 5 days. My last chest X-ray showed improvement. I can breathe again. I feel like a new person. I am still getting terrible sweating episodes everyday but no one is worried. They feel it is still my body’s way of releasing toxins and infections, even without the fever. I have to say there were moments in these last 20…
Yes, I’m still in the hospital with a pneumonia. Today marks day 12. I can definitely have another blog about what is happening especially since being immune suppressed isn’t helping the situation. Most people look at February 14 as the day of love but it will never be that for me. No, for me it will always be the weekend back in 1998 when I was moving into my new house. Valentine’s weekend and my left foot started to go…
