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Tag: Accepting ms

Something good about insurance

Something good about insurance

I spoke with my case manager for my insurance today. Before Covid started, I had a really wonderful case manager. Every month she’d call and check in, as per her job description, but she always made me feel like she genuinely cared. She remembered things about me not necessarily related to my medical case. Then one day she was just gone. I didn’t know if Covid was the reason for the change, if she quit or left, I just had…

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It is not easy having multiple sclerosis

It is not easy having multiple sclerosis

I had another rough night. This time I was alone. My daughter has been home for two months and the one night she’s out I really needed her. Unfortunately in my exhausted state, I fell. Not only did I fall but I was in a very bad spot. I was now exhausted and helpless. Not a good place to be. I spent a lot of time and energy maneuvering myself into a position of hope. Hope that I could possibly…

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I am a Multiple Sclerosis Warrior

I am a Multiple Sclerosis Warrior

I have to say things in my family have been sad. Bad news received about a loved ones health has hit everyone hard. It puts having multiple sclerosis in its respected place. A place that has always helped me deal with my disease on a more positive level. I’m here!!! I didn’t receive a death sentence when I was diagnosed with multiple sclerosis. My disease could be difficult but I could still live a very rewarding life. I’m coming up…

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A list of thankful Thanksgivings

A list of thankful Thanksgivings

Thanksgiving is here again. It’s time for family traditions of certain dishes made once a year with an extremely large turkey that is never eaten and always consumed for at least three days after today. My family all contribute a dish. I always make my carrot soufflé which I’ve learned to make for every single diet I am following. https://multipleexperiences.org/2018/03/16/carrot-souffle-vegan-or-non-vegan/. My mom makes a corn soufflé and the stuffing. My sister makes the soup and sometimes brings a vegetable. We…

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A sad realization about Multiple Sclerosis

A sad realization about Multiple Sclerosis

#just wanted to add this note because this was such a dismal post. A few hours after I wrote this post I realize something very important, with secondary progressive MS you are not functional one day to Stuck on the floor another. I don’t have relapses anymore. I now realize I was sick with this abscess infection and it played havoc with my MS. So yes, this is a possible future for me with MS, but it won’t happen overnight….

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Realistic view of multiple sclerosis disability

Realistic view of multiple sclerosis disability

It didn’t flood in the streets yesterday so no daytime pictures to show you. Although that bulldozer is still there I’m excited today because we are playing mahjong here in my building. I’m excited to play but exhausted so I’m grateful to be playing here. I feed the dogs and showered that’s it, I’m wiped out. This is why I straightened my hair because I’d never have the energy anymore to blow dry and style. I’m glad I’m still able…

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Me and my wheelchair

Me and my wheelchair

I made it!!! Another summer survived. I’m ready for my jeans and sweatshirts. Im ready to turn off the AC. I’m ready to open my balcony windows and let the crisp air in through the condo. I’m ready to snuggle under warm blankets. I did ok this summer mainly because of my van and wheelchair. I couldn’t have done most things without the use of my wheelchair. Thankfully my van provides me with that ability to be mobile and safe….

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Falling again all week

Falling again all week

I’ve been really good lately. Especially since I switched to my wheelchair outside my condo. I went from falling almost daily to a couple of times in a month. That’s a big difference. It goes to show you how much the walking was really causing me to just exhausted myself. Yes I needed the van to make my life easier but I also needed to admit to myself the time has come and I really couldn’t walk anymore. It was…

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Four Steps

Four Steps

It is four steps from my bed to my bathroom. I always had this goal to be able to make it to my bathroom unaided. To get up and safely walk to the bathroom. A few years ago I could, why couldn’t I do it again? I have a progressive disease, that’s why. I could probably stumble through the four steps and make it to the bathroom but the word safely wouldn’t be in that sentence. I have fallen even…

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Thankful to my Aid

Thankful to my Aid

It’s Saturday which means I don’t have my aid. I love my aid, I truly do. I’m so grateful for everything she does but I look forward to my weekends and my alone time. Is that bad? It is nice to get out of bed whenever I want and get dressed whenever I want. Sometimes I even stay in pajamas all day. My week is still busy enough to tire me out. It doesn’t take much. I like to watch…

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