Technically I’ve had Multiple Sclerosis for 20 years at this point. I had my first case of optic neuritis in the summer of 1997 but I wasn’t officially diagnosed until February 1998. Doesn’t really matter at this stage of the game but it is why, like I said in my post yesterday, I don’t prepare for my neurologist appointments. Yesterday I saw my neurologist that diagnosed me in 1998. I remember back in the beginning at my check ups I’d…
There are steps recommended to prepare for your doctor appointment. Write down any new symptoms you’ve been experiencing if this is your ongoing doctor or all symptoms if this is a new doctor. Bring any test results you’ve received from any other doctors even if you don’t think they aren’t relevant. Have a list of all the medicine you are currently taking which should include anything non-prescription as well. Make a list of you questions or concerns before hand. If…
Yesterday I wanted to write a post about which medicines are working. I woke up yesterday feeling great, great as far as a good MS day. I worked out Saturday, Sunday and Monday having no pain in my arm or shoulder. What was more amazing was my stamina. I was able to get through each workout. Even though I napped all three days, I’ve been napping most afternoons when I haven’t worked out Anyway. What I noticed is my legs…
Go Me!!! I haven’t worked out on my own since sometime in June thanks to my shoulder tendonitis. Against my will, every time I tried to do something I felt it in my shoulder and I knew if I continued, the pain would be back until I ended up needing another cortisone shot. A shot I’m only allowed to receive once every 3 months. It killed me to stop. I worked out 6 days a week for years. I had…
I have to admit something, since I started taking Prozac again, I stopped crying over everything. I was literally crying over everything good and bad, happy and sad, it didn’t matter. I didn’t want to believe it but I was not altogether. It’s been maybe 5-6 months I’ve been back on it and I realized something the other day. I am happy Is my life perfect, absolutely not, but I’m happy. I started my spiritual journey over a year and…
Good morning and happy Monday. In the US its Labor Day and most people are off from work. Today marks the end of summer. School usually starts tomorrow for most kids. To me, it’s another day. I don’t work anymore. It’s been well over a year, closer to two years and I’m still adjusting to that fact. You’d think I’d have all this time on my hands but everyday seems to fly by no different than if I was on…
Yesterday was the second part to my Ocrevus infusion. My next appointment is February 26, 2018. The all the headaches that it took me to get on Ocrevus and then all the headaches it took getting the infusion site, I’m happy to say I am done with this infusion. As expected, the infusion was smooth I had no allergic reactions of any sort. Other than being extremely tired from the Benedryl that goes through the IV line, I felt fine….
OK, maybe this is a little too premature. I mean this is only day two of being home without my daughter. I had to run the first errand today that normally she would run for me. Needed money at the bank. To take my walker out to go to the ATM that’s just way too many steps. So I wrote a check out to myself and cashed it at the drive-thru teller window, it worked. I have to be smart…
This will be a crazy week. My daughter just came home yesterday. She went up to my sister for a long weekend with her boyfriend that went really well. All I know is it’s 9:00am and she’s already out of the house to hang with him before driving him to work. She moves into her NYC dorm this week and by dorm, I mean the New Yorker Hotel. This “dorm” comes complete with tv, refrigerator, fitness room, 24 hour doorman…
My dad and I were talking about me having multiple sclerosis. He was saying it wasn’t fair, I have a good heart. My first words were I still have a good heart, that hasn’t changed but I knew what he meant. I heard this before from him, from my mom, my stepdad, from most of my family. They look at multiple sclerosis “stealing” away part of my life. I’ve discussed this topic a few times in my blogs. …
