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Tag: accommodations

Home again with ramps

Home again with ramps

I’m sitting in my van outside my mom and stepdad’s house. The home I grew up in but haven’t entered in close to a year. I became unable to navigate the deck steps to get inside. Between those steps and the leaves I can’t even imagine how slippery it is besides difficult. Today I’m here because they are installing a ramp for me through another entrance in the house. Just in time for Thanksgiving. This will be the first time…

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When MS limitations are a problem

When MS limitations are a problem

I was in a bad mood yesterday. I don’t normally have bad moods that last anymore but yesterday I did. I just didn’t snap out of it and truthfully I am not sure I wanted to. I was upset for my daughter Love to my daughter which certainly set the stage for my day but then just little things got to me. Dumb things. The phone constantly ringing drove me nuts. An email I was answering disappeared. My favorite shirt…

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Falling again all week

Falling again all week

I’ve been really good lately. Especially since I switched to my wheelchair outside my condo. I went from falling almost daily to a couple of times in a month. That’s a big difference. It goes to show you how much the walking was really causing me to just exhausted myself. Yes I needed the van to make my life easier but I also needed to admit to myself the time has come and I really couldn’t walk anymore. It was…

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Couldn’t hold myself up

Couldn’t hold myself up

This wasn’t good. I went to play mahjong for the second time yesterday. It is a game like rummy cube with Asian tiles. Your hands must match to an approved hand on a card. You play with four people around a square table taking turns picking and throwing tiles. Not very strenuous unless you have some type of multiple sclerosis symptom making it difficult. I had that MS symptom. At first I was fine, other than my game itself. However…

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7 Perfect Gift Ideas for a Loved One Living with MS

7 Perfect Gift Ideas for a Loved One Living with MS

I saw this article on healthline https://www.healthline.com/health/multiple-sclerosis-ms-gift-guide This list was put together by a MS blogger and her blogger community of items they felt were great for holiday gift giving. The article goes into full details of each item and where you can find them. It even explains why each item is a good gift. The holiday gift for a person with MS: Cooling clothing and gear Help around the house Home Entertainment Productivity or adaptive technology Wear for your…

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Back home

Back home

I realized something being away, my home is definitely the easiest place for me. I love my sisters house it is absolutely beautiful. It’s very easy for me to get around on the first floor. However, there is no bathroom with a shower. They made a shower outside which is really cool but it’s a little more difficult for me to get to. It’s difficult for me to navigate her outside property. The outside property is so amazing but getting…

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My travel scooter and me

My travel scooter and me

This was my best purchase for my MS. The scooter comes in three parts the battery, the body and the steering column. It is compact enough to fit into the trunk of my little Honda Civic. I use this all the time and up until the last few years I’d take the scooter in and out of my car and assemble it without any issue. It helped my significantly my last year working. I’d assemble it and zip to my…

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“Fear” of walking with canes from the rollator

“Fear” of walking with canes from the rollator

My MS therapist was here yesterday. She was doing some balance stuff with me in the pool observing my core. She said you should be walking now without the rollator. Not without help mind you, but with canes. My back is so straight I should be able to be upright, not leaning over with the rollator. So that is the new game plan, to start teaching my legs to walk again with two canes for balance. We did a practice…

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My bedroom equipment

My bedroom equipment

My accessory equipment, is far from limited to walking. I’ve been having problems in the bedroom to, and I’m not talking about sex. I’ve been having issues getting on my bed because I can’t get my knee high enough to get myself on. It’s also too high for me to just sit down and get on like that. That’s not all!!! I can’t sit up in the bed, because my core muscles are becoming less and less existent. This creates…

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To go into a wheelchair debate…again

To go into a wheelchair debate…again

I have to admit, I’m getting tired. Those walks to get from my car inside a building are taking longer and longer. Each step is getting harder and harder to make. I don’t know why, I saw my mom for like three seconds the other day and I said I think the next car has to be equipped for a wheelchair. Since this was such a fast visit she said does this have to be a discussion now. Who could…

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