One of the greatest things about my blog, is the feedback I’ve gotten from people that have known me for years. It’s the first time they really seen into my life on a daily basis. The truth is as soon as the how are you feeling question is asked, I immediately, say ok, how are you? I mean really what was I going to say to them, I had an accident today I peed my pants or or maybe I…
I always call it a scooter, but technically I guess it’s a wheelchair. I really wanted the hoverRounds MPV5. When I called it was over $4000 and of course my insurance wouldn’t cover it. My thinking was I was going to wait until I became Medicare eligible and get it then. Medicare pays for it. The problem with that outlook is first I’m not gonna be eligible for Medicare until, two years after the start of my disability which is…
This one is not for my family. This is a bad one, so I give you the advance warning. Everyone’s been telling me I’m doing too much.I am a little stubborn about slowing down. I been having a lot of trouble at physical therapy lately. I had been fatiguing not just a little but severely and I don’t know why. It’s the same routine I had been doing since November. Luckily, I had my daughter around when I got home to…
We’ve had a turbulent relationship over the last 19 years to say it mildly. There have been many one-sided fights. I’ve told my story before bug sometimes it’s worth repeating. My first MS attack (exacerbation) was sever. The entire left side of my body went numb and atrophied. I couldn’t walk, hold anything or feel on the left side. It came on fast starting in my foot on a Saturday and by the time I saw the doctor that Friday…
I was future tripping yesterday. A very evil thing to do. Future tripping, in my world, is when you worry about what’s going to happen in the future when you really have no idea. So you get your all worked up over a possibility but not an actuality. I future trip over the same three things in my life; my multiple sclerosis,where am I going to live or my finances. I work hard at NOT doing it but one of…
I’m afraid to date. I’m afraid to be rejected again. I’m afraid to be hurt again. I’m afraid to fall in love again. I’m afraid of the pain. I’m afraid to have to explain the embarrassing MS symptoms again. I’m afraid of the embarrassment again. I’m afraid of the anxiety again. I’m even afraid of the excitement of it again. I’m afraid of the hope of it again. I’m afraid of the beginning, the middle, and the end. I’m just…
New York and the surrounding area is expecting a nor’easter tomorrow. Basically it means that everyone in the tri-state area makes French toast. You can’t find at the local supermarket eggs, milk or bread. I’ve lived in New York my whole life. I’ve been through my share of the nor’easter’s, hurricanes, rainstorms, and even windstorms. I have yet to see a time where we were unable to get a food delivery made to the local store to stock their shelves….
I’m all packed up and ready to go. My daughter Mikayla and I are going to Florida to visit my dad and stepmom. I’m already exhausted and I haven’t even gone to the airport yet. My final morning items had to be packed all while watching the puppy. Zoey wasn’t being very cooperative to say the least. I just picked up the dog sitter now. I’m very lucky I have her. She loves my dogs almost as much as I…
This is so follow up or maybe part 2 of yesterday’s post. I’ve listen to many people and read many blogs that discuss the need for assistance devices and how they “aren’t ready”. A huge part of the progression of multiple sclerosis chips away at your personal independence. It’s a stage of the disease that affects the ego and the perception of normal or healthy. It’s when we start to look different from everyone else. When we can’t hide the…
For many years now my neurologist has wanted me to wear a brace on my legs. I finally gave in to this and was fitted for the brace. Why did I need a brace? Why would anyone with MS need a brace? Well there are several reasons a person might benefit from a brace let’s start with weakness of the muscles. Muscle weakness can cause a problem called foot drop where the top portion of your foot drags on the…
