https://www.facebook.com/donate/249027742420824/ Why We Want to Create a World Free of MS 9! years ago, when I said I wanted to ride 30 Miles for an MS Bikeathon, my step-but-real sister Jamie said “I can barely walk 300 feet – why do they do these events that people with MS could never do?” I said “Maybe it’s because we hope someday you’ll be able to.” I have done this event for 9 years now. Life is harder for Jamie, but I’m…
Does the change of seasons affect your MS symptoms? I know that the actual seasons affect symptoms like the heat of summer or the cold of winter but I mean the transition between the seasons. I’ve had a tough time with my walking lately and with fatigue. My physical therapist says season change. I found this article online http://tamingmultiplesclerosis.com/multiplesclerosis-seasonchangesarticle.html. Usually I feel effects of season changes maybe from winter to spring. It’s unusual for me to feel this way from…
Sometimes it is overwhelming dealing with a chronic illness and navigating through daily life. I know I’ve lived there. I use to unleash it all on my mom. She has so much empathy and I adore her but she doesn’t have multiple sclerosis and she didn’t, she couldn’t, fully understand. I was sad for a long time until I changed my thinking and changed my perception on life. I have a life coach that helps me stay on track and…
I see my neuro who I’ve been seeing now for over 20 years. These appointments always seem to upset me. Not the doctor, the reality of my disease. It isn’t that I don’t understand multiple sclerosis or I don’t know the current research, I like to think I am somewhat current on the disease. It is more going to a doctor and leaving with the knowledge that your not going to get better. It’s very silly actually because I know…
Good morning. I’m happy to report I am finally feeling better. I actually started feeling a little better on Saturday. I went swimming and was able to still get around my condo without having that bone feeling fatigue. So it took about 6 days for me to start feeling better. By Sunday I was good. It was a tough week but I don’t have to worry about the infusion again until March. I can handle that. I remember when I…
I love the quiet of the mornings and watching the sun sparkle off of the moving water. My daughter is home for the weekend and she’s happy, loves her school, it is all I wanted for her to experience. Even with my severe fatigue this week, I’ve swam in the pool and have a new appreciation for the repetitive nature of the exercise. I love my condo. This place was made for me from accessibility to my view. I am…
Fatigue!!!! That’s the only word I could use. I’ve been exhausted but it’s been in my muscles too. It’s been hard just getting around my condo because of the muscle fatigue. I almost went into my scooter last night. Every step is difficult to take not only in my legs but in my arms holding me up with the walker. I don’t remember feeling this way last time but last time they messed up and split my dose. This was…
I had my physical yesterday and brought up my favorite topic, weight. Once again I put on a couple of pounds. This has been a very frustrating year for me when it came to weight. My doctor finally made some sense as opposed to just saying it’s your multiple sclerosis. He explained why. Yes, I do swim which is great, but I also sit around quite a bit. As my symptoms have gotten worse, my muscles have atrophied to a…
You just can’t make this stuff up. I think the last problem has been finding an agency to come to my home for the 5 hour infusion. The reason I say I think is because I’m not even 100% sure that is what the issue is about. If that is the hold up I told them I could do it there but now that might not be an option. I’m very confused. I’m still not sure if I’m getting the…
My sweet, smart, sneaky boy got out the other day when I was leaving for therapy. Man he is fast. If I’m in the house, sitting in my chair, you can open the door up wide, he would never leave. Once he knows I’m going out, it’s a mad dash to get out before him. I am either in a scooter or using my walker there is no such thing as a mad dash for me. I purchased a gate,…
