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Tag: diagnosed with MS

National MS Society Invests in Clinical Development of Human Antibody for Progressive forms of MS

National MS Society Invests in Clinical Development of Human Antibody for Progressive forms of MS

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Another great article found in multiple sclerosis news today by Patricia Inacio, PHD. Fast Forward, a nonprofit subsidiary of the National Multiple Sclerosis Society, will invest up to $330,000 to advance the clinical development of an antibody that was shown to lessen inflammation and nerve cell damage in a multiple sclerosis (MS) mouse model. The funding will help develop the antibody (a protein the immune system uses to neutralize pathogens such as bacteria and viruses) in order to have properties more similar to those…

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Permanent handicap spot

Permanent handicap spot

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I had a condo board meeting yesterday. I love where I live but the condo needs a lot of work. I know they are looking for solutions from the homeowners of how to get that work done. I think that they should combine our assessment loans take out additional funds and just do what needs to get done and stop piecing together each project. However, technically I’m a renter. My mom and step dad pay the maintenance fees so I…

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Proud to be with the spirit junkies

Proud to be with the spirit junkies

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Well I can certainly say today’s content is much lighter than yesterday’s. We are discussing marketing and the online presence. Hey, I got that. I write a blog. It’s all about website and blog related information. Right up my alley, no tears. Yet I walked out of the meeting pretty cranky. The room we used was so hot. Every time a window was opened, some one closed it minutes later. Here I am in a very light shirt overheating. Overheating…

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I hate MS too!!!

I hate MS too!!!

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People write in their journals all during this event, I blog. Partially because my penmanship isn’t so good anymore and my hand tires out and because this is where I work out my sh@t. Today was fine until the last ten minutes before lunch. We did a soul retrieval meditation where you find your inner child and hold them close, becoming their protector. Keeping them safe, loved and cared for. Bringing your inner child back into your heart. This is…

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I’m getting tired of fighting

I’m getting tired of fighting

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What started out as a good day ended pretty horrible. Getting the last few items together for me trip, I ended up severely exhausted. I don’t even know if exhausted is the right word. I had to get something in my daughter’s closet for her and it required me to go to the floor. I really knew this was bad because I was so tired, I just didn’t realize how bad. I couldn’t get up. I didn’t even have the…

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A good nights sleep

A good nights sleep

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When was the last time you had one of those? I went into bed my usual time, around 9:30. I usually watch tv a little before closing my eyes. I feel asleep and slept until 3:30 before I had to use the bathroom. That is a record for me. A long stretch. I feel back asleep and woke up at 7:30 and I was awake and refreshed not groggy and still sleepy as I have been for many mornings now….

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Should I take Ocrevus?

Should I take Ocrevus?

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If your doctor has suggested Ocrevus you are certainly moving up the ladder of disease modifying drugs for multiple sclerosis. With each of the IV drugs especially come side effect risks. Ocrevus is no exception. The most serious they show is: Risk of cancers (malignancies) including breast cancer. Follow your healthcare provider’s instructions about standard screening guidelines for breast cancer. That’s a pretty serious risk to consider. They also talk about PML Progressive Multifocal Leukoencephalopathy. This is the brain infection caused…

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An elusive molecule that sparks Multiple Sclerosis article from Science Magazine

An elusive molecule that sparks Multiple Sclerosis article from Science Magazine

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A very interesting article found on the web from Science Magazine written by Mitch Leslie. This article has been copied below. https://www.sciencemag.org/news/2018/10/elusive-molecule-sparks-multiple-sclerosis-may-have-been-found Our immune cells normally pounce on intruding bacteria and viruses. But in multiple sclerosis (MS), immune cells target the nervous system instead. Now, researchers may have pinpointed a long-sought molecule called a self-antigen that provokes these attacks, pointing a way toward potential new treatments. “The work is monumental, and it’s tantalizing,” says neuroimmunologist Hartmut Wekerle of the Max…

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Accepting the stages of MS

Accepting the stages of MS

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I’ve been looking to get funding for a handicap vehicle for the past few months. It hasn’t gone as well as i was hoping. On top of this my own car is a lease which isn’t over until July 2019. My mother kind of yelled at me for getting ideas in my head prematurely. She isn’t wrong but what I needed to explain to my mom that it wasn’t so much the idea of the handicap vehicle it was the…

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Life coaching for people with a chronic illness

Life coaching for people with a chronic illness

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Sometimes it is overwhelming dealing with a chronic illness and navigating through daily life. I know I’ve lived there. I use to unleash it all on my mom. She has so much empathy and I adore her but she doesn’t have multiple sclerosis and she didn’t, she couldn’t, fully understand. I was sad for a long time until I changed my thinking and changed my perception on life. I have a life coach that helps me stay on track and…

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