It’s official, today I renewed my blog’s domain name for another two years. This also renewed my iPage contract that my blog is hosted through. I made my commitment to my blog, to my readers and to myself. That means I’m going to be around every day for another two years. I have to admit, I’ve been a little lazy with this blog. I haven’t put much effort in lately. It wasn’t done on purpose, it was just a tough…
Now it’s time for the big reveal… In this final video, Gabby shares a BIG invitation. https://xh111.isrefer.com/go/sjmdigital2018/Youtwohearts Her invite is for people who want to inspire others by doing what inspires them. People who want to gain the confidence to own their purpose and take action on their dreams right now. People who feel called to speak out, be heard and create movements. In the video, Gabby invites you to join her Spirit Junkie Masterclass Digital Course. https://xh111.isrefer.com/go/sjmdigital2018/Youtwohearts This course…
I had therapy yesterday, and it was harder than it was the other day. I happened to be talking about the difficulty with a couple other people and one of the therapists. She said she can’t discuss diagnosis but we could. Which made me automatically know that the people around me all had multiple sclerosis. We all said “Yup I have MS” and we all we agreeing how we were having a “tough” MS day. Is it possible for people…
This is a super valuable link. I had this on my post yesterday and I think it got a little lost. The title wasn’t correct to attach this with. This shows you everything out on the market currently for MS. It shows the things that are currently in clinical trials as well as new research being developed in regards to MS. It is everything you need to know that is available, coming and being developed at this moment. https://mymsaa.org/publications/msresearch-update-2018/ For…
Marked by May 30th. This day is to bring the MS community together. #bringinguscloser This day is for us to share our stories, raise awareness, and come closer to finding a cure. Today I’m going to attach a 2018 MSAA’s research update. It has so much information. It has all the current drugs, experimental drugs and drugs in clinical studies. A great research tool for anyone with MS. https://mymsaa.org/publications/msresearch-update-2018/ Full downloadable version https://mymsaa.org/publications/msresearch-update-2018/download/
I’ve been asked this question quite a number of times so I thought I’d address this in my blog. I’m asked, do you feel any better since you’ve been on Ocrevus? Where I’d love to give a wonderful answer here, the answer is NO. however it’s also very important to answer, I also don’t feel worse. When I was on Tysabri, I was still feeling worse month to month. That’s why we made the switch originally to Rituxan, which is…
I didn’t sleep well yesterday. Actually I barely slept. It’s been a very long time since I had a night like that. I don’t do well with lack of sleep, most MS patients don’t. For me personally, lack of sleep can create a very bad day. Luckily, I’m home today. I’ll be cooking in the morning. This afternoon my air conditioner/heater in my bedroom is being fixed. I end today with my MS fitness trainer in my pool. I have…
My accessory equipment, is far from limited to walking. I’ve been having problems in the bedroom to, and I’m not talking about sex. I’ve been having issues getting on my bed because I can’t get my knee high enough to get myself on. It’s also too high for me to just sit down and get on like that. That’s not all!!! I can’t sit up in the bed, because my core muscles are becoming less and less existent. This creates…
I’d like to pretend this isn’t really happening. It’s much easier to live in ignorance. However, I’ve been noticing this symptom coming up more often than I’d like to see it. When I’m having dinner and it can be fish, beans, or rice, Sometimes the food doesn’t get all the way down my throat when I swallow. I almost have to drink a little water to push it down. It’s just almost feels like the food builds up and it’s…
I’ve had L’hermitte’s sign. It is defined by Wikipedia as: is an electrical sensation that runs down the back and into the limbs. The sensation can feel like it goes up or down the spine. It is uncomfortable. If you never experienced it, for me, I’d get these electric sensations down my leg. I’d get it without even bending my neck. At least it had a name. About four years ago, I started getting this symptom in my lower back…
