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Tag: diagnosed with MS

No Ocrevus infusion again more insurance issues

No Ocrevus infusion again more insurance issues

I have no words. I’m so frustrated that the only thing I could do was cry. My insurance made some error and terminated me on one of their systems. I knew about this since last week and I had an escalated adjustment that was being done. I didn’t find out until yesterday they didn’t do it by accident when I called for something else. However the kicker is that the error that terminated me, terminated me in my authorization department….

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A Rainy Day in NY

A Rainy Day in NY

Does rain ever affect your multiple sclerosis? I find lately that the moisture in the air does have a small impact on my day. It’s certainly plays a role with my migraines. I’ve had headaches basically all week. However today they are expecting a nor’easter. New York State agencies are gearing up for a Thursday-to-Saturday nor’easter that could drench and blast Long Island with rain and high winds and envelop upstate with snow, officials said. From the moment I woke…

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Multiple Sclerosis drugs, vitamins and therapies

Multiple Sclerosis drugs, vitamins and therapies

I kicked ass this morning. New workout and I stood on my feet for a record of 18 minutes. Omg!!! That’s incredible. Granted my feet can’t move too much, but that’s ok, that was an tremendous amount of time. In physical therapy, one of the main things they do for people with multiple sclerosis, or people that can’t really stand on their own anymore, is put them in a device that either stand them up or strap them in bars…

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A tough morning

A tough morning

I’ve added my Beachbody workouts back into my morning. I know that I push my body to its limit when I do these. I also know my body needs a long recovery time. I usually plan accordingly. Today, I didn’t plan on issues with Zoey too. I had to stop my workout to “clean up” after Zoey. Not normally a big deal but my legs were already 20 minutes into the workout. I ended up sliding down on the floor….

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When in doubt, blame multiple sclerosis

When in doubt, blame multiple sclerosis

When I first was diagnosed, maybe in the first 10 years, I have to admit any little thing I felt I used to think immediately it was the multiple sclerosis. It took me a while to kind of know how MS showed in my body, really what MS was, and how it was going to affect me. Now that it’s been 20 years, I think what I find amazing is when other doctors don’t have an answer so they blame…

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My 20 year anniversary with multiple sclerosis

My 20 year anniversary with multiple sclerosis

It just dawned on me, that February 14 was my 20 year anniversary with MS. It was the weekend of February 14 that I was moving it to my house with my ex-husband. My left leg started to feel numb. The numbness started traveling up my leg through my muscles. I wasn’t just numb, my muscles were becoming week and atrophied. It was The following Friday I went to a family doctor who sent me immediately to this neurologist. To…

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Me and my MS got along well on vacation

Me and my MS got along well on vacation

You have to be thankful for the small things. I’m grateful that my multiple sclerosis “issues” were handled effectively for my stay in Florida, despite the heat. I know both my dad and stepmom are nervous. They aren’t around me daily and the symptoms of my MS scare them. It’s more the fears of the falls I think. I did fall but neither of them were in their presence. One was me once again sliding off the toilet. What’s with…

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Blogging everyday

Blogging everyday

I don’t know why I blog every day. I don’t know where I put it in my head that each day I was going to put in an entry. I think at some point it became so cathartic for me that I wanted to blog every day because I was working through so much shit. Now I find that sometimes I really don’t have much to add. I sometimes wonder if I’m putting almost pressure on myself to submit a…

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MS “Guardian Molecule” may lead to new MS treatment.

MS “Guardian Molecule” may lead to new MS treatment.

https://www.medicalnewstoday.com/articles/320772.php Interesting article in medical news today. A team of scientists, in Northwestern University of Chicago, found a interesting relation between testosterone and the immune system. They may have discovered a molecule that actually cards against multiple sclerosis. They call the molecule, the Guardian Molecule. In a quick summary, the team discovered that testosterone prompts a group of immune cells called mast cells to secrete a signaling molecule called interleukin 33 (IL-33) in the males. The scientists found that IL-33…

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OnGuard and Oregano Oils

OnGuard and Oregano Oils

The first thing I need to explain about the DoTerra oils, is they are therapeutic grade. The only essential oils you can just ingest are therapeutic grade. Meaning if you buy an oil from any store that is synthetically made, chances are you can’t swallow them.Let me explain OnGuard first. Everybody should have OnGuard. OnGuard is a preventative oil. It’s something you would take if you’ve been around people that are sick, if your about to get on a plane…

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