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Tag: difficulties with ms

Oops I did it again

Oops I did it again

I am so run down again and I don’t even know what I did. Of course I do, it was the stress of the parking space that I’ve dealt with for the last week https://multipleexperiences.org/2018/08/08/he-called-me-a-bad-name/. Ever since I stopped working, I have very little stress in my life. Aggravation, yes with my insurance company I deal with that all the time. For some reason every now and then I get into some sort of stress situation my body just can’t…

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Housing help for those with Multiple Sclerosis

Housing help for those with Multiple Sclerosis

To recap my situation, I had asked my condo for a permanent parking spot close to the main door. This was because it was the only door I could enter that didn’t have steps, which I can’t do, and wasn’t too far for me to walk. It was granted. Then due to other condo residents requesting the same thing, they gave 5 other people spots. The non-disabled residents had an uproar. Now they voted to revoke ALL the reserved spots….

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A MS anger post

A MS anger post

If you follow my blog you know I’m normally positive. I don’t have the energy to be positive right now. I am so tired of being 46 and having to have somebody cut my food. If I make some sort of protein for dinner, like steak which I recently started eating, my aid has to cut it before she leaves. I could barely even cut chicken. I can barely use one of my stainless steel silverware and usually opt for…

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Running on empty

Running on empty

Man I am beat. I am so tired and I’ve really done nothing but what I’ve done is enough to exhaust me. July has certainly has been a very tough month for me. It started out with my insurance changing to Medicare. Goodbye referrals!!! However, I also had many doctors appointments appointment scheduled because of it. Then I ended up with cellulitis at the beginning of July. July 9 actually was my first trip to the emergency room. I know…

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High dose biotin

High dose biotin

Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…

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High dose biotin

High dose biotin

Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…

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Regulating body temperature with MS

Regulating body temperature with MS

I almost forgot this fact, well slightly forgot this fact. However my multiple sclerosis let me know it is still here in abundance. I got that crazy symptoms yesterday where I couldn’t regulate my body temperature. I’m sitting on my chair inches away from the AC and sweating. Sweat was literally dripping down my neck. Why? I wasn’t even moving. Normally this happens after I eat maybe something a little hot, this time it happened for no apparent reason. Guess…

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Out to lunch

Out to lunch

Taking a decompression day. Migraine day 3. My migraines aren’t usually to the degree that I need to be in bed but when you’ve had this underlying pain in your head for days, you start to go somewhat mad. That’s how I feel today. My right eye is slightly twitching and the dull constant pain is just making me crazy. So I’m “out to lunch” for the day. Will take one of the 6 migraine pills I’m given each month…

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Steps are not my friend but my friends are

Steps are not my friend but my friends are

I went to my friends house yesterday for an impromptu get together for the Fourth of July. It was extremely hot which I know is difficult for me with MS. However, I really wanted to go at least for a little while. I would’ve been fine in the heat if it wasn’t for my bladder. For some reason yesterday, I had to pee every hour. Not that that’s the worst thing in the world, except she has steps. I had…

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The girl that says No

The girl that says No

I hate being this person. I hate making the decisions and choices and saying No to things because “I don’t feel good”. I’m use to all this garbage but I still hate it. I got a long week coming up. And I just haven’t been feeling great. I canceled a lot of stuff over the last two weeks and I’m happy to say that at least I could. I’m lucky that I’m in the position and I have the option…

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