Every six months it’s hard to remember what happens. I should look back to my own blog posts. I was so wrapped up in how the steroids made me sick that I forgot that they would also give me burst of energy. It explains how I stood for a half an hour during a work out. This week that burst of energy went from 100 to about 30. I wrote that my workout was pretty bad in terms of stamina…
I slept in this morning. It was nice. I think even my dogs were still tired because both of them remained snuggled up next to me in bed. I woke up again with a headache. The good news is is that regular aspirin helps and then it goes away, the bad news is that I think this is my fifth or sixth day waking up with a headache. This time I think it’s a little more weather related because it’s…
It’s always a good day followed by bad days. Doesn’t it always seem to go that way? I woke up this morning feeling like I smoked six packs of cigarettes. I haven’t smoked in almost 4 years maybe more. I hate that feeling. It’s something like the MS hug but not quite. I have a headache mild but there nonetheless. I also had a little numbness going down my left side out of nowhere. My stamina in my workout was…
My poor Marshy was sick all night. When my dog is up sick, I’m up. It was a long night but he finally got whatever was in his belly out. Unfortunately it came out all over my blanket that now needs to be cleaned. After that final incident, he was finally able to sleep. It’s a crazy coincidence, but I too woke up sick this morning. Today I normally go to physical therapy. I woke up I got dressed and…
The sun is out. My view is beautiful. My furniture for the balcony has been ordered and soon my blogs will be written from there. My little four-legged angels let me sleep a little in later today. I just woke up feeling great. It is just so nice to feel better. I have to admit it was a rough couple of weeks but that Ocrevus infusion. It really wasn’t even the Ocrevus that did it, it was the steroids. It’s…
Who writes a blog about toilets? Well, I guess I do. When I moved into my condo I had the smallest toilets. I had to give people a warning so they would be aware, it was a big drop down before your butt hits. For someone with MS, this created a very big problem. There were times I slid right off the toilet. Then there were other times I couldn’t quite get off the toilet. It was so low down…
Two amazing things happened over the last two days that I have to tell you about. Yesterday I actually swam in the pool. I do the shorter side of the pool as opposed to the length for safety reasons. My poor aid doesn’t want to have to deal with jumping in and trying to save me where I can’t touch the bottom. There I was, back and forth and back-and-forth for almost a full half an hour in the pool….
I was informed by my friend that my pharmacy now makes a combination pill. It’s the same three pills a day, but it now has in addition to the hundred milligrams of biotin, 400 mg of the Alpha lipoic acid. You can click on the pill bottle on my webpage or you or you can click on the link I provided below. https://highdosebiotin.net/ Alpha lipoic acid has been studied to help in secondary progressive MS. https://www.mssociety.org.uk/ms-research/treatments-in-the-pipeline/lipoic-acid Studies in animal models…
When i’d have an MS relapse, I would take 1000 mg a day in an IV for four days. Then you would’ve taper off from that thousand milligrams to an 80 mg pill three times a day and continue down to a 60, 40, 20 etc.. To me, that taper, always still made me sick because going from that 1000mg to 80mg was such a huge jump. My body would always have the steroid withdrawal anyway so I stopped doing…
I have no words. I’m so frustrated that the only thing I could do was cry. My insurance made some error and terminated me on one of their systems. I knew about this since last week and I had an escalated adjustment that was being done. I didn’t find out until yesterday they didn’t do it by accident when I called for something else. However the kicker is that the error that terminated me, terminated me in my authorization department….
