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Tag: living with a chronic disease

MultipleSclerosis.net Latest on MS Clinical Trial

MultipleSclerosis.net Latest on MS Clinical Trial

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This article was from multiplesclerosis.net. I haven’t posted much on research lately. Probably because I am at a point where most drugs in the horizon won’t help. However, today Facebook has been showing ads for multiple sclerosis drugs that ARE NOT drugs approved for MS or covered by insurance. They are just ads from companies trying to target a market for the chronic disease. I don’t mind the ads when it’s nail gels or low carb keto snacks. By all…

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What is multiple sclerosis?

What is multiple sclerosis?

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I don’t know how many times I’ve talked to people that had the cure for multiple sclerosis. If it was just about diet and taking vitamins, I promise you, I would be doing that. People mean well. Unfortunately, they read one story and think it works the same way for everyone. If there was a universal cure we’d know. I think that diet and vitamin can make a difference in the early stages of multiple sclerosis. The healthier your body…

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Another Accomplishment

Another Accomplishment

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Happy Friday. It’s been another rough week for me but I did have another major victory. I was able to get in the shower for the first time since the end of the December. I have a small shower with no bathtub. However, it isn’t flat to the floor. There is a small step that was difficult for me to navigate before I got sick. After the pneumonia, getting over that step was an obstacle I didn’t think I’d ever…

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My brother Howard’s 13th year for Bike MS

My brother Howard’s 13th year for Bike MS

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Every year I put this on my blog. Every year he does this amazing fundraising event in my name. This is a MS fundraiser that I wouldn’t be able to participate in based on the level of my disability. I haven’t been able to ride a bike in many years. That is what is amazing about these fundraisers, most of the time the people participating don’t have MS. I thank everyone who donates. However, I truly thank the people out…

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Welcome to my Online Therapy Group

Welcome to my Online Therapy Group

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I have a question for my multiple sclerosis readers, how often do you come across other MSers on the same path as you? I have met many people with similar symptoms. I talk to many who were even diagnosed somewhat similarly. I don’t speak to many who have had the same progression path as me. There are always the similarities in the symptoms we face at certain points. The symptoms of MS are somewhat common as the disease progresses, at…

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Ugh Multiple Sclerosis

Ugh Multiple Sclerosis

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I’ve dealt with multiple sclerosis for 24 years yet I can still be surprised by its symptoms. You’d think I wouldn’t be shocked anymore. I had to spend most of my afternoon in my comfy chair. The exterminator was coming back, to treat my room, for the third time. It seems that the guy who boasted about his 12 year experience with bedbug, still missed the bedbugs alive in my room. He reported seeing nothing after I told him specifically…

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Informing Employers of MS Diagnosis

Informing Employers of MS Diagnosis

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I was thinking this weekend about when I worked. I’ve read a few MS blogs where people discussed when, if ever, do they disclose their disease to their employer? If you are new to my blog, I was diagnosed with multiple sclerosis when I was 26. I’m 50 years old now. I became disabled when I was 44. That left a lot of years when I worked. I held my last position for 13 years with the same company but…

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Occupational therapy vs Physical Therapy

Occupational therapy vs Physical Therapy

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Happy hump day. Another day, another week. This week was a little different for me because my daughter is home for a visit. I love having her home. I love her energy in the house. I love how she climbs into my bed when she wakes up and is always in my bed before I go to sleep. I miss her when she leaves until I get use to her being gone again. Right now I get to enjoy her…

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Vagus Nerve research in Multiple Sclerosis

Vagus Nerve research in Multiple Sclerosis

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Ok a new MS research blog brought to my attention by my dad yesterday. It has to do with the Vagus Nerve (pronounced like Las Vegas). The vagus is a major nerve that runs throughout the body and controls crucial functions, like heart function and blood pressure, digestion, breathing and immune response. It also conveys sensory information to the brain about the current status of internal organs; a process termed interoception. The vagus nerve is a major therapeutic target for…

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Nap time

Nap time

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I took a nap yesterday. First time I did that in ages. I didn’t sleep well the night before. I knew I needed more sleep. I kept my pajamas on and stayed under my blanket. I spoke to everyone I wanted to talk. I text my daughter and mom to let them know that I was going to sleep. I even put my phone on do not disturb. Thankfully, the house phone didn’t ring through out the afternoon. I appreciate…

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