MS Fatigue…still the worst symptom

MS Fatigue…still the worst symptom

It's better now or I wouldn't be able to write this blog post. I'm a happy passenger in the car, going to visit my sister for the weekend. My day started at around 6 when I woke up but laid in my bed meditating. I like doing that on my coach better but why waste the time laying there in my bed. I purposely showered and did my hair yesterday so I wasn't rushed this morning. It never fails a few extra steps here a few extra steps there, it doesn't take much. I went out to pick up my dog sitter and by the time I got back home I was exhausted. I did a few small things while my daughter put our stuff in the car. All I needed to do was drive to my parents house and get in there car.

It took me almost 30 minutes to be able to lift my arms. They were so heavy. I just sat there with them hanging in my lap. I had an itch on my face that I didn't even want to scratch. I couldn't move. I usually go to the bathroom one last time before the start of the long trip but there was no way I could walk the extra steps. I literally felt if nature called too bad I'll change later. There is nothing like fatigue. Nothing compares. Nothing is worse. I'm doing a little better now but I'm still recovering. Luckily I still have 2 more hours of this trip. I'm thankful I'm not driving.

8 thoughts on “MS Fatigue…still the worst symptom

  1. I totally agree!. An unexpected side effect of The Ocrevus for me has been more energy. I felt the difference after the first infusion but wanted to wait and see if it was real. I just made my bed, and I’m not huffing and puffing and longing for a nap. I hope it continues! I also pray that you will have a similar reaction!

  2. Fatigue is definitely a horrible part of MS. Not too many people that do not have MS understand that, which is just frustrating! The increased pain I have been battling for the past few weeks has increased my fatigue drastically.
    I love what you said, “It is just another day but never a reason not to smile.” You have a great attitude and I respect that!! I hope you have a great visit weekend visiting your sister!! Take care and keep smiling:)

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