If you follow my blog you know I’m normally positive. I don’t have the energy to be positive right now. I am so tired of being 46 and having to have somebody cut my food. If I make some sort of protein for dinner, like steak which I recently started eating, my aid has to cut it before she leaves. I could barely even cut chicken. I can barely use one of my stainless steel silverware and usually opt for…
Man I am beat. I am so tired and I’ve really done nothing but what I’ve done is enough to exhaust me. July has certainly has been a very tough month for me. It started out with my insurance changing to Medicare. Goodbye referrals!!! However, I also had many doctors appointments appointment scheduled because of it. Then I ended up with cellulitis at the beginning of July. July 9 actually was my first trip to the emergency room. I know…
I went to my friends house yesterday for an impromptu get together for the Fourth of July. It was extremely hot which I know is difficult for me with MS. However, I really wanted to go at least for a little while. I would’ve been fine in the heat if it wasn’t for my bladder. For some reason yesterday, I had to pee every hour. Not that that’s the worst thing in the world, except she has steps. I had…
I hate being this person. I hate making the decisions and choices and saying No to things because “I don’t feel good”. I’m use to all this garbage but I still hate it. I got a long week coming up. And I just haven’t been feeling great. I canceled a lot of stuff over the last two weeks and I’m happy to say that at least I could. I’m lucky that I’m in the position and I have the option…
I have a label. Not really the label I would’ve liked, but it’s mine. For the one or two times I’ve been in the emergency room I have the bracelet labeling me a fall risk. On my nursing assessment I’m labeled a fall risk. My recent aid agency evaluation I have bright neon yellow stickers on all my papers. I’m a fall risk and I have the cuts and bruises to prove it. I’m always bruised somewhere, usually my knees…
I guess this is kind of like a part two to yesterday’s blog before I was diagnosed. https://multipleexperiences.org/2018/06/25/before-i-had-multiple-sclerosis/ What I’m not going to write here is about my attack in 2014 that really disabled me. What I am going to say is what I would change if I could go back. Again hindsight is 20/20 but this is for the newly diagnosed and people more on the early side of their onset of multiple sclerosis. When your first diagnosed, it’s…
I was 26 years old when I was diagnosed. I’m 46 now. It’s been 20 years. It’s hard to remember what life was like before it. It becomes a blur because I also had my daughter at 27. When I had my first attack, my entire left side went numb with muscle atrophy and they needed to rule out stroke. Due to this fact they made me come off birth control. They just forgot to tell me I was clear…
I’ve never been a believer in oils or vitamins but the results made me a believer. Every family should own the family essentials kit. It can replace most of your medicine cabinet. I can’t live without OnGuard and Oregano. I use it every time I feel like I’m getting sick or I’m near someone getting sick. With MS I take Ocrevus which wipes out my immune fighting B-cells. Other than a few days here and there I made it through…
Well some of the fatigue in my arms has lifted, thankfully. I slept for 11 hours last night. Considering most days I sleep about 8-9 hours, I’m not usually lacking in the sleep department. I guess I still needed it. I probably could have slept longer but the phone rang. I had the worst spasm in my leg yesterday. It took a few minutes for the muscles to relax so I could get my leg to lower back down. It…
If I had a dollar for every time someone said to me, “feel better soon” when they see me walking. People see that I’m young and assume I just hurt myself or had some sort of surgery. It’s hard for them to imagine that this is how it is everyday. Unfortunately, I have MS, there is no feeling better soon. I’ve felt good, at least relative to how good I could feel with my disease. I attribute it to my…
