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Tag: living with MS

Two year renewal of Multiple Experiences

Two year renewal of Multiple Experiences

It’s official, today I renewed my blog’s domain name for another two years. This also renewed my iPage contract that my blog is hosted through. I made my commitment to my blog, to my readers and to myself. That means I’m going to be around every day for another two years. I have to admit, I’ve been a little lazy with this blog. I haven’t put much effort in lately. It wasn’t done on purpose, it was just a tough…

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The video that can change your life

The video that can change your life

Now it’s time for the big reveal… In this final video, Gabby shares a BIG invitation. https://xh111.isrefer.com/go/sjmdigital2018/Youtwohearts Her invite is for people who want to inspire others by doing what inspires them. People who want to gain the confidence to own their purpose and take action on their dreams right now. People who feel called to speak out, be heard and create movements. In the video, Gabby invites you to join her Spirit Junkie Masterclass Digital Course. https://xh111.isrefer.com/go/sjmdigital2018/Youtwohearts This course…

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The weekly review

The weekly review

Well Mahjong was a blast yesterday. I picked it up pretty well. My mom was impressed how quickly I got it. I grew up around my mom playing it every Wednesday and Thursday afternoon. If I was home sick I’d hear them all day calling the tiles. After a while you pick some things up. Everyone else was getting it by the end. We are going to get another lesson. I just finished swimming 50 laps. The pool was filed…

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Bad MS day

Bad MS day

Yesterday was a tough one. From the moment I woke up, to the moment I went to bed. I even slept for 12 hours. It started first thing in the morning, I fell almost to soon as I got out of bed. The spasticity in my body was at an all time high. I really wanted to take a second neurontin, but I know that can make me very loopy and would make my walking even harder. Since I was…

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Other weather conditions that impact MS

Other weather conditions that impact MS

I had therapy yesterday, and it was harder than it was the other day. I happened to be talking about the difficulty with a couple other people and one of the therapists. She said she can’t discuss diagnosis but we could. Which made me automatically know that the people around me all had multiple sclerosis. We all said “Yup I have MS” and we all we agreeing how we were having a “tough” MS day. Is it possible for people…

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It’s just me, myself and I

It’s just me, myself and I

Oh, it’s just me, myself and I Solo ride until I die ‘Cause I got me for life Oh I don’t need a hand to hold Even when the night is cold I got that fire in my soul I woke up singing this song this morning. It’s easy to feel that way with a chronic illness. Especially if you’re single. It’s not that I don’t have a great family, I do. It’s not that I don’t have great friends,…

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The best concert I went to

The best concert I went to

My daughter is going to the governors Ball today. It sounds really fancy but it’s actually a concert. It’s on an island in New York City. Her boyfriend bought her and her best friend tickets for her birthday. It’s has a whole bunch of artist and I’m happy to say I don’t know any of them. I just know it has her favorite, Post Malone. I guess he’s popular because even as I was speaking this blog Siri new to…

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2018 MSAA’s New MS Research Update links

2018 MSAA’s New MS Research Update links

This is a super valuable link. I had this on my post yesterday and I think it got a little lost. The title wasn’t correct to attach this with. This shows you everything out on the market currently for MS. It shows the things that are currently in clinical trials as well as new research being developed in regards to MS. It is everything you need to know that is available, coming and being developed at this moment. https://mymsaa.org/publications/msresearch-update-2018/ For…

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MS World Day

MS World Day

Marked by May 30th. This day is to bring the MS community together. #bringinguscloser This day is for us to share our stories, raise awareness, and come closer to finding a cure. Today I’m going to attach a 2018 MSAA’s research update. It has so much information. It has all the current drugs, experimental drugs and drugs in clinical studies. A great research tool for anyone with MS. https://mymsaa.org/publications/msresearch-update-2018/ Full downloadable version https://mymsaa.org/publications/msresearch-update-2018/download/

It was almost a catastrophe

It was almost a catastrophe

I had my electrician here yesterday doing a new outlet on my balcony. He move my door, my front door, into an open position so he can come and go as needed. When it was done I said to my aid could you lock the door. She said she was running out to take the garbage out and to get the mail. When she came back in she never lock the door. It was hot yesterday so I have all…

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