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Tag: living with MS

Another one of those days, weeks, months with Multiple Sclerosis

Another one of those days, weeks, months with Multiple Sclerosis

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Beautiful sunny day and I wake up with a headache. You know when you just haven’t felt right? That’s how I’ve been lately. I know, I know I have multiple sclerosis. Yes, that’s very true and the chances of it being just something with my multiple sclerosis is extremely high. However I just haven’t felt right. I’m not really sure what’s up. My doctor called with my blood work and again, everything is fine. I definitely don’t have Cushing’s, diabetes…

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When the simple isn’t so simple

When the simple isn’t so simple

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I’m covered in ink. I have a new printer and I was finally putting it together yesterday. It has six different ink cartridges. As I was opening the ink cartridges, because my hands are all wacky I guess I was holding them wrong so the ink just kept getting on my hands. Thus, I’m covered with ink. I made a mistake with two of the cartridges and didn’t put them in right. Now I was left with the task of…

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Healthcare Proxy for your children

Healthcare Proxy for your children

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Went out for dinner last night family, and I learned astounding news. Did you know that when your child turns 18, if there is no health care proxy, a doctor doesn’t need to talk to the parent? The doctors don’t need to confide, consult or discuss anything relating to your child. They are legally an adult without a healthcare proxy if something happens, by law, you have no rights as a parent. A health care proxy (also known as a…

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Biotin, dating, Ocrevus and me

Biotin, dating, Ocrevus and me

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It’s been a strange couple of days. I’m finally able to start taking my high dose biotin again. If you read any of my other threads on biotin, and there are many, what mostly showed in the biotin is that my walking speed increased by seven seconds. This is according to my neurological test by my doctor. However I’ve stated, and I still stand by, that biotin helped do more. Besides noticing more weakness in my legs and hip area,…

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I’m not losing weight because I have MS

I’m not losing weight because I have MS

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This is what the doctor firmly believes. I’ve had to slow down because the MS has disabled me and I physically can’t do much. Definitely not what I wanted to hear. However I can’t say that it’s definitely a false thought. He looked at my records over the past two years and I’ve gained a total of 6 pounds. Again you might think oh my God big deal you gained 6 pounds in two years, What’s the big deal? The…

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MS without the high dose Biotin

MS without the high dose Biotin

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I haven’t taken a high dose biotin in about a 2 1/2 weeks. I have to admit there is a change. The only thing with MS, you just don’t know what the actual culprit is. I’ve been very weak in both my hip area and my thigh area. That’s causing a greater difficulty than normal getting up if I’m down on the floor. I’ve also had major fatigue again. Where I was sitting down and my eyes start closing whether…

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I’m officially unpacked

I’m officially unpacked

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It’s official, all my boxes are unpacked. My daughters room still has a couple, but she’ll get to them when she’s ready. For me, and God bless my aid, all mine are gone. I am never moving again. If for any reason I do I will pay the extra money to have them pack and unpack. Now it’s just a matter of organization of where I put some stuff. Changing certain places or positions of spices, pans or maybe cups….

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Happy New Year-Welcome 2018

Happy New Year-Welcome 2018

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Wow, that was fast year. Happy new year to everyone, have to start with that. I hope everybody had a safe and wonderful evening wherever you were. I have to be honest, I was asleep before midnight. I think this is the first time I fell asleep on New Year’s before midnight. I was always so happy to be done with the current year and hopeful that the next year would be better that I guess I had to see…

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Relapsing Remitting and Secondary Progressive MS, a combination of both

Relapsing Remitting and Secondary Progressive MS, a combination of both

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It’s 20 years that I’ve dealt with my multiple sclerosis. When I first started doing research on my own illness, it was stated that most people go into the second stage of the disease after about 10 years. The second stage of the disease being secondary progressive MS. Most people start off in relapsing remitting and, at the time, it was said that 80 percent of people in this stage will go into secondary progressive around that 10 year mark….

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Adjusting 2 dogs to their new home

Adjusting 2 dogs to their new home

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For first time ever, there really might not be a post for me tomorrow. Tomorrow is my move day. As of tomorrow, everything is going to the condo including Zoey and Marshmallow. I’m a little concerned about these two. I would’ve liked to have had them there before tomorrow but it didn’t work out. I was going to bring them over but it turns out my painter is allergic. I know for them it would’ve probably been better if they…

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