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Tag: living with MS

Hope you guess my name

Hope you guess my name

Please allow me to introduce myself…I think a re-introduction is necessary. On the basic front I’m a 45 year old woman. I have an 18 year old daughter about to go to college. I am a single mom with two dogs that I love immensely. I have multiple sclerosis. I was diagnosed at the age of 26. That is me and for some people that is enough information. However, to me, those are numbers and statistics, doesn’t say anything about…

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Prozac making a difference

Prozac making a difference

Not too long ago I wrote a post about MS and depression  how there is a link. I asked my doctor to go back on Prozac, a drug I was on for over 18 years. I stopped taking Prozac along with a bunch of my other drugs when I stopped working back in January 2016. I was just taking so many pills to get through a day, I thought by not working anymore, I didn’t need them all.  Well it’s…

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I’m 45 years old and I’m getting a nursing aide

I’m 45 years old and I’m getting a nursing aide

Certainly didn’t envision this scenario when I was young. I wanted to be a baker. I wanted to go to Johnson and Wales culinary school and become a great baker, not a cook. I don’t know what when I changed that dream to going to school for Hotel and restaurant Management, but I did, since that was my degree I graduated with. I know if asked later in my 20’s I’d tell you I should have been an accountant. However…

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A more structured life with Multiple Sclerosis

A more structured life with Multiple Sclerosis

This was a very long week. Came off an incredible high of my amazing weekend at the spirit junkie master class. Followed right by my doctor for my shoulder, getting a Cortizone shot and finally feeling better.  Going right back to New York City for another neurologist check up with my specialist. Wednesday through Thursday saw 24 hours of drama with my daughter and her boyfriend. Luckily, that ended with a three hour dinner with friends, lousy food but great company….

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MS neurological doctor visit

MS neurological doctor visit

Doctors, doctors and more doctors. I have a lot of appointments coming up.  Yesterday I was saw my neurologist. He’s been the doctor I’ve been with the longest, the one who diagnosed me 19+ years ago. At this stage of the game with my MS he treats me systematically. The specialist in the city treats me for my major MS drug. This is a section from a my own blog about doctor day check ups. It’s doctor day. What does that…

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Why continue to exercise with multiple sclerosis

Why continue to exercise with multiple sclerosis

“Exercise is essential not just for overall well-being, but also to help manage symptoms of multiple sclerosis (MS). In fact, exercise might even slow progression of the disease, according to a 2012 review published in Therapeutic Advances in Neurological Disorders.” This was according to everyday health. The National Multiple Sclerosis Society says basically the same thing and adds, “An exercise program needs to fit the capabilities and limitations of the individual. It may need to be adjusted as changes occur in…

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Am I depressed?

Am I depressed?

I have to be honest, I’ve been asked this more than once by family members, doctors and friends. For probably 15  of the 19 years I have MS, I was on Prozac.  I think in my 20s I was miserable for many reasons, especially when I got my diagnosis. However, the main reason for Prozac was because Betaseron, my MS therapy drug, had the side effect of depression.  It’s like you take a drug, but then you need something to…

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Rewriting a story I believed for most of my life

Rewriting a story I believed for most of my life

When I was 16 or 17 years old I went to a psychic, the only thing I remember, and unfortunately I’ve always lived by, she told me I won’t have a lot of friends but the few that I would have will be true friends. I remember thinking  that’s good I’ll have true friends for the rest of my life. At 16 and 17 when girls were still backstabbing each other I thought that was a pretty good thing. As…

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Perseverance, persistent or just plain stubborn

Perseverance, persistent or just plain stubborn

I don’t know which one I am take your pick. If you haven’t read my post for the last couple of days, I had an incident. I slid to the floor and I wasn’t able to get up.  One of the culprits could’ve been the fact that I increased one of my medicines, Gabapentin which is the generic form of Neurontin, due to the pain in my shoulder from tendonitis. I increased it on Sunday, and the incident happened on…

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Today was a very disheartening MS day

Today was a very disheartening MS day

This one is not for my family. This is a bad one, so I give you the advance warning.  Everyone’s been telling me I’m doing too much.I am a little stubborn about slowing down. I  been having a lot of trouble at physical therapy lately. I had been fatiguing not just a little but severely and I don’t know why. It’s the same routine I had been doing since November. Luckily, I had my daughter around when I got home to…

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