I had therapy yesterday, and it was harder than it was the other day. I happened to be talking about the difficulty with a couple other people and one of the therapists. She said she can’t discuss diagnosis but we could. Which made me automatically know that the people around me all had multiple sclerosis. We all said “Yup I have MS” and we all we agreeing how we were having a “tough” MS day. Is it possible for people…
Oh, it’s just me, myself and I Solo ride until I die ‘Cause I got me for life Oh I don’t need a hand to hold Even when the night is cold I got that fire in my soul I woke up singing this song this morning. It’s easy to feel that way with a chronic illness. Especially if you’re single. It’s not that I don’t have a great family, I do. It’s not that I don’t have great friends,…
My daughter is going to the governors Ball today. It sounds really fancy but it’s actually a concert. It’s on an island in New York City. Her boyfriend bought her and her best friend tickets for her birthday. It’s has a whole bunch of artist and I’m happy to say I don’t know any of them. I just know it has her favorite, Post Malone. I guess he’s popular because even as I was speaking this blog Siri new to…
This is a super valuable link. I had this on my post yesterday and I think it got a little lost. The title wasn’t correct to attach this with. This shows you everything out on the market currently for MS. It shows the things that are currently in clinical trials as well as new research being developed in regards to MS. It is everything you need to know that is available, coming and being developed at this moment. https://mymsaa.org/publications/msresearch-update-2018/ For…
Marked by May 30th. This day is to bring the MS community together. #bringinguscloser This day is for us to share our stories, raise awareness, and come closer to finding a cure. Today I’m going to attach a 2018 MSAA’s research update. It has so much information. It has all the current drugs, experimental drugs and drugs in clinical studies. A great research tool for anyone with MS. https://mymsaa.org/publications/msresearch-update-2018/ Full downloadable version https://mymsaa.org/publications/msresearch-update-2018/download/
I had my electrician here yesterday doing a new outlet on my balcony. He move my door, my front door, into an open position so he can come and go as needed. When it was done I said to my aid could you lock the door. She said she was running out to take the garbage out and to get the mail. When she came back in she never lock the door. It was hot yesterday so I have all…
My MS therapist was here yesterday. She was doing some balance stuff with me in the pool observing my core. She said you should be walking now without the rollator. Not without help mind you, but with canes. My back is so straight I should be able to be upright, not leaning over with the rollator. So that is the new game plan, to start teaching my legs to walk again with two canes for balance. We did a practice…
I don’t understand how people don’t want the unconditional love of a pet. I think everybody should be pet people either dog or cat. I’ve had them both. Some of my cats were prissy, but most were very affectionate. Although my cat’s affection was nothing like my dogs. When I had by cats, and I had six at one point, my dad always said you’re a dog person. He was right. Not to mention that I’m actually allergic to cats…
Can we talk about handicap parking? I know I’ve had blogs about this before, but it’s still a very sore topic for me. I understand that there’s a requirement that a certain amount of spots, based on the size the property and the total number of spots allocated, have to be given to handicap parking. It just never seems to be enough. Why is it never enough? Because everybody seems to get one. It’s not for the truly disabled anymore….
My condo gave me an assigned spot. There are six handicap spots in front of my building. Normally I leave in the morning and I’m back in the mornings, I get a spot back. However if I go out towards the afternoon, sometimes I don’t get a spot. The other close spots could also get taken pretty easily especially at night. If I’m having dinner with a friend, when I come home, parking is a problem. I can’t walk that…
