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Tag: living with multiple sclerosis

The miracle of my puppy Zoey

The miracle of my puppy Zoey

I’m 15 workbook lessons from the end of my year doing A Course in Miracles. Not that it means anything really because on day 366, I’m just going to start again. Why? Because now my mind is trained differently and I’ll understand the lessons differently. I’ve learned some amazing things over the year, about myself, miracles, my relationship with God and forgiveness. I felt like telling the story of my most amazing miracle this year, which was my puppy Zoey….

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Alpha Lipoic Acid and MS a patient’s view

Alpha Lipoic Acid and MS a patient’s view

On December 13, 2016, I wrote a blog about Alpha Lipoic Acid and multiple sclerosis. On July 3, 2017 this article was published in medical news today. http://www.medicalnewstoday.com/articles/318225.php Ive been talking alpha lipoic acid now for 7 months. I still take 2 600mg pills a day. One in the morning and one at night. Alpha lipoic acid started about 3 months after starting high dose biotin. Another Vitamin shown that in high doses has stopped disease progression. Since both biotin…

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Prozac making a difference

Prozac making a difference

Not too long ago I wrote a post about MS and depression  how there is a link. I asked my doctor to go back on Prozac, a drug I was on for over 18 years. I stopped taking Prozac along with a bunch of my other drugs when I stopped working back in January 2016. I was just taking so many pills to get through a day, I thought by not working anymore, I didn’t need them all.  Well it’s…

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A more structured life with Multiple Sclerosis

A more structured life with Multiple Sclerosis

This was a very long week. Came off an incredible high of my amazing weekend at the spirit junkie master class. Followed right by my doctor for my shoulder, getting a Cortizone shot and finally feeling better.  Going right back to New York City for another neurologist check up with my specialist. Wednesday through Thursday saw 24 hours of drama with my daughter and her boyfriend. Luckily, that ended with a three hour dinner with friends, lousy food but great company….

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MS neurological doctor visit

MS neurological doctor visit

Doctors, doctors and more doctors. I have a lot of appointments coming up.  Yesterday I was saw my neurologist. He’s been the doctor I’ve been with the longest, the one who diagnosed me 19+ years ago. At this stage of the game with my MS he treats me systematically. The specialist in the city treats me for my major MS drug. This is a section from a my own blog about doctor day check ups. It’s doctor day. What does that…

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The only thing you control in a chronic illness

The only thing you control in a chronic illness

I was diagnosed with MS in 1998. That was over 19 years ago. It’s 42.2% of my life. That’s a long time. There’s only one sure thing with a chronic disease, it holds true with any situation, the only part fully in your control is Your attitude Yes, you could eat right, take the medicine as directed, exercise, not smoke, and not do drugs, these are all wonderful things that may slow down a disease, but it won’t cure one….

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Rocking Motherhood in 10 different ways despite MS

Rocking Motherhood in 10 different ways despite MS

I follow all the blogs I come across with people that have a MS. I like to see how they deal with it what’s going on with them, what medicine they take, etc. I like to read how they deal with the obstacles of having MS and balancing life. One of my personal favorites is Jen from http://Www.trippingthroughtreacle.wordpress.com. Jen’s blog is uplifting and inspiring despite her illness.  Jen has had MS for over 20 years. For me especially at 19 years…

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I have issues

I have issues

My daughter stepped on the scale and was 5-6 pounds lighter. My daughter, who is normal and not obsessed with the scale as her mom, doesn’t weigh herself often. She has no reason to, she’s very thin, looks wonderful in everything, she’s 17. Her mother, on the other hand, has finally learned to limit herself to once a week. However when her daughter weight was so low, I needed to check the scale myself. It was the same as four days…

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Am I depressed?

Am I depressed?

I have to be honest, I’ve been asked this more than once by family members, doctors and friends. For probably 15  of the 19 years I have MS, I was on Prozac.  I think in my 20s I was miserable for many reasons, especially when I got my diagnosis. However, the main reason for Prozac was because Betaseron, my MS therapy drug, had the side effect of depression.  It’s like you take a drug, but then you need something to…

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Perseverance, persistent or just plain stubborn

Perseverance, persistent or just plain stubborn

I don’t know which one I am take your pick. If you haven’t read my post for the last couple of days, I had an incident. I slid to the floor and I wasn’t able to get up.  One of the culprits could’ve been the fact that I increased one of my medicines, Gabapentin which is the generic form of Neurontin, due to the pain in my shoulder from tendonitis. I increased it on Sunday, and the incident happened on…

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