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Tag: living with multiple sclerosis

Vegan black bean brownies

Vegan black bean brownies

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First thing is this recipe was found on the Minimalist Baker website. http://minimalistbaker.com/vegan-gluten-free-black-bean-brownies/. Lots of fun recipes there to look around and try. For me to be on any kind of diet, or non diet, I have to have something to appeal to my sweet tooth. My favorite thing through Hungryroot was the black bean brownie mix but to ship just one or two of their products was expensive and buying a whole bunch of their products to get the free…

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Vegan check in…

Vegan check in…

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I’m only doing these “check ins” because I’m new to being vegan. I made for the first time the last few weeks a pasta dish that was delicious. The recipe is in this post.https://multipleexperiences.org/2017/02/09/forks-over-knives-vegan-chef-dels-mushroom-stroganoff/ My soup is still my favorite, it’s easy filling and so good.https://multipleexperiences.org/2017/02/01/vegan-creamy-potato-curry-soup/. I did run out of my almond milk/coconut milk that I whip together for my coffee a few times. That lead me to the half and half. I finally just bought Silk the non dairy…

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A family gathering always worth it

A family gathering always worth it

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I had a Bar Mitzvah yesterday. That’s when a boy (Bat Mitzvah for a girl) turns 13 and becomes an adult in the Jewish religion. It was my 1st cousins son’s event. I was at her Bat Mitzvah 28 years before. Ok that’s one way to put the whole age thing into perspective. Dressing in simple clothes is overwhelming adding the fancy outfit and full make up…Well I gave myself plenty of time to work in stages to hopefully prevent…

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The mental progression of assistive devices

The mental progression of assistive devices

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This is so follow up or maybe part 2 of yesterday’s post. I’ve listen to many people and read many blogs that discuss the need for assistance devices and how they “aren’t ready”. A huge part of the progression of multiple sclerosis chips away at your personal independence. It’s a stage of the disease that affects the ego and the perception of normal or healthy. It’s when we start to look different from everyone else. When we can’t hide the…

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When your MS progresses your assistive devices progress too

When your MS progresses your assistive devices progress too

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As multiple sclerosis progresses, so does your assistive needs. The first thing I got was the handicap parking permit. I’ve had this for many, many years. I got this early in my disease when I use to work in NYC and had to take a train. The parking at the station was insane and even back then walking that long distance in a rush to catch a train was very difficult. I was never able to run or skip again…

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Forks over Knives Vegan Chef Del’s Mushroom Stroganoff

Forks over Knives Vegan Chef Del’s Mushroom Stroganoff

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Anyone that knows me knows I don’t cook. I just don’t like it but I know my way around the kitchen. As my multiple sclerosis worsened cooking became even more difficult. I have limited time I can stand on my feet, over a stove or cook top. I also have limited time I can cut and chop before my hands fatigue. Many times I will prepare a dish only to not be able to eat because my hands literally cannot…

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Falling at home

Falling at home

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I spent a lot of time hitting the floor yesterday and not by choice. Since becoming vegan I’ve had episodes of an unsettled belly. Ok I can understand that. However when you try to make a B-line to the ladies room with multiple sclerosis, doesn’t usually workout too well. The term run isn’t in my vocabulary of things I can do anymore and walking fast can cause other issues. HELP I’VE FALLEN AND I CAN’T GET UP!!!! I should be…

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The Internet for multiple sclerosis

The Internet for multiple sclerosis

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I was 27 years old when I was diagnosed with multiple sclerosis. At that time MS had 2 therapy drugs available Avonex and Betaseron. The information on MS wasn’t what it is today because the Internet wasn’t what it is today. I can’t remember how but I joined a support group for multiple sclerosis. I’d say 3/4 of the group were in wheelchairs. At the age of 27, who had recovered 95% from her first attack, this was NOT what…

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Second part of Rituxan infusion today

Second part of Rituxan infusion today

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Most doctor’s do two rounds two weeks apart and then you repeat every 6 months. It will be the same senario as when I posted the first time https://multipleexperiences.org/2017/01/16/rituxan-infusion-day/. I feel bad for Zoey, the 5 month old puppy, today because no one is around and she has to be in her crate for 6+ hours. I feel bad for me because Zoey will have a lot of energy when I get home. Maybe it’s Marshmellow, my 8 year old frenchie,…

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I’m not Josey Grossey

I’m not Josey Grossey

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I woke up so angry and sad. My hometown bar is closing, last night was their final night. I spent most Friday and Saturday nights from the age of 35-39 there. I wasn’t going to go, actually the one person I thought would ask me didn’t even ask me (hurt feeling #1). Then I was asked by someone unexpected. At first I said yes but then common sense kicked in. First the group of girls I used to go with,…

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