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Tag: ms challenges

Pain, twitches and spasms oh my!!!

Pain, twitches and spasms oh my!!!

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https://www.mstrust.org.uk/news/views-and-comments/neuropathic-pain-invisible-illness Neuropathic pain affects up to 25% of people with MS. It is a consequence of damage to the myelin that surrounds nerves in the central nervous system. Very commonly the pain is not due to physical damage to the nerve but as a result of a physiological change within it. This means that even when the initial cause is treated or removed, the nerve remains permanently changed and the resulting painful symptoms can become a long-term problem. Once present,…

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MS Bike Tour 2018

MS Bike Tour 2018

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Each year my step-brother bikes for Multiple Sclerosis. This is his reasons, his letter and his team. Please donate to help find a cure for MS. He bikes under Team Jamie but he bikes for us all. Why We Want to Create a World Free of MS 9! years ago, when I said I wanted to ride 30 Miles for an MS Bikeathon, my step-but-real sister Jamie said “I can barely walk 300 feet – why do they do these…

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Plenty of fish rejection

Plenty of fish rejection

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I took the plunge and rejoined plenty of fish. I had to re-enroll because every time I tried to retrieve my password, that I have forgot, it never sent me the link. So I answered all the questions, set up my profile and uploaded pictures. I got a phone call so I left the app before I had a chance to browse. When I came back it logged me out. I tried to put in the new password that I…

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Dysphagia and Multiple Sclerosis

Dysphagia and Multiple Sclerosis

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Dysphagia simply put is difficulty swallowing. It means it takes more time for food to travel from your mouth to your stomach. Why this affects people with multiple sclerosis? Muscle weakness once again. The good news is it is seen more in advance stages of the disease but it still can appear at any time. It can be mild or advanced. Hey, it’s MS. It has no set plan of attack. According to WebMD https://www.webmd.com/multiple-sclerosis/speech-swallowing Symptoms of a Swallowing Problem…

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My inherited family’s bbq

My inherited family’s bbq

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I was invited to a bbq today that I actually declined. I declined because of the elevator issue in my building https://multipleexperiences.org/2018/08/30/im-stuck/ and also because the bathroom is up an entire flight of steps. The reply to that was “we aren’t taking no for an answer. We will help you up the steps and into the building, whatever we have to do.” Who are these people? Well these are my ex-boyfriends family. I’ve developed a relationship with them that stretch…

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A quiet Saturday

A quiet Saturday

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It’s just me today. Well me Zoey and Marshmallow. The elevator in my building won’t be fixed until sometime next week so I’m a little stuck. I can’t put my scooter together or take it apart by myself. Kind of leaves me with no options for getting downstairs or back upstairs while I’m alone. You know what, I really don’t mind. I’m exhausted. I think I’ve been exhausted for the past two months. I have no complaints being home by…

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I’m stuck

I’m stuck

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Elevator is still not working. A special part had to be ordered or something. I am stuck in my condo on the fourth floor. I’d be able to get downstairs with my aid. I do better going down. Of course then once I came home I’d be in trouble. If my aid was with me I could use my scooter and go to the first building. No big deal but tonight is my hair night. Meaning I get my hair…

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Another nursing assessment today

Another nursing assessment today

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The assessment today though is important because it’s with my actual insurance company. I already spoke to my case manager who is so awesome and called me back on her private line. She explained to me if they try to give me less hours not to sign anything. This way the case goes into review and more than just this one nurse assessment has a say in my hours allocated. I’m not nervous because it is what it’s going to…

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Back home

Back home

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I realized something being away, my home is definitely the easiest place for me. I love my sisters house it is absolutely beautiful. It’s very easy for me to get around on the first floor. However, there is no bathroom with a shower. They made a shower outside which is really cool but it’s a little more difficult for me to get to. It’s difficult for me to navigate her outside property. The outside property is so amazing but getting…

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My optic neuritis story

My optic neuritis story

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My first unofficial MS relapse was optic neuritis in 1997. Six months before my diagnosis. The optic neuritis wasn’t even diagnosed at the time of the relapse it was realized after my diagnosis. I was working in a fast food restaurant as an assistant manager, who was about to be promoted. However, my manager at my current location and I didn’t always see eye to eye. She added a lot of stress to my situation at work. I couldn’t wait…

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