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Tag: ms difficulties

Pain, twitches and spasms oh my!!!

Pain, twitches and spasms oh my!!!

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https://www.mstrust.org.uk/news/views-and-comments/neuropathic-pain-invisible-illness Neuropathic pain affects up to 25% of people with MS. It is a consequence of damage to the myelin that surrounds nerves in the central nervous system. Very commonly the pain is not due to physical damage to the nerve but as a result of a physiological change within it. This means that even when the initial cause is treated or removed, the nerve remains permanently changed and the resulting painful symptoms can become a long-term problem. Once present,…

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Dysphagia and Multiple Sclerosis

Dysphagia and Multiple Sclerosis

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Dysphagia simply put is difficulty swallowing. It means it takes more time for food to travel from your mouth to your stomach. Why this affects people with multiple sclerosis? Muscle weakness once again. The good news is it is seen more in advance stages of the disease but it still can appear at any time. It can be mild or advanced. Hey, it’s MS. It has no set plan of attack. According to WebMD https://www.webmd.com/multiple-sclerosis/speech-swallowing Symptoms of a Swallowing Problem…

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A quiet Saturday

A quiet Saturday

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It’s just me today. Well me Zoey and Marshmallow. The elevator in my building won’t be fixed until sometime next week so I’m a little stuck. I can’t put my scooter together or take it apart by myself. Kind of leaves me with no options for getting downstairs or back upstairs while I’m alone. You know what, I really don’t mind. I’m exhausted. I think I’ve been exhausted for the past two months. I have no complaints being home by…

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I’m stuck

I’m stuck

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Elevator is still not working. A special part had to be ordered or something. I am stuck in my condo on the fourth floor. I’d be able to get downstairs with my aid. I do better going down. Of course then once I came home I’d be in trouble. If my aid was with me I could use my scooter and go to the first building. No big deal but tonight is my hair night. Meaning I get my hair…

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Another nursing assessment today

Another nursing assessment today

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The assessment today though is important because it’s with my actual insurance company. I already spoke to my case manager who is so awesome and called me back on her private line. She explained to me if they try to give me less hours not to sign anything. This way the case goes into review and more than just this one nurse assessment has a say in my hours allocated. I’m not nervous because it is what it’s going to…

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Back home

Back home

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I realized something being away, my home is definitely the easiest place for me. I love my sisters house it is absolutely beautiful. It’s very easy for me to get around on the first floor. However, there is no bathroom with a shower. They made a shower outside which is really cool but it’s a little more difficult for me to get to. It’s difficult for me to navigate her outside property. The outside property is so amazing but getting…

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My childhood home

My childhood home

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It can be so hard sometimes. Each step more laborious than the last. My step dad has a SUV and getting in and out of the car is an ordeal every time. But what upsets me the most is going to my mom and step dads house. The house I grew up in is so difficult now for me to get into. There is a deck on the outside of the front of the house. When it was redone, they…

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My travel scooter and me

My travel scooter and me

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This was my best purchase for my MS. The scooter comes in three parts the battery, the body and the steering column. It is compact enough to fit into the trunk of my little Honda Civic. I use this all the time and up until the last few years I’d take the scooter in and out of my car and assemble it without any issue. It helped my significantly my last year working. I’d assemble it and zip to my…

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A win is a win

A win is a win

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I swam 25 laps. Yippee!! I drank water before and during my swimming. I had little aches but they didn’t last long and weren’t severe at all. This was the first time I was able to do 25 laps in weeks. It is silly but I’m very excited. It’s the small things with MS. No matter how small a win is I’ve learned to appreciate the win. I’ve dealt with MS for 20 years. I spent most of those years…

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Albany bound in 3 days

Albany bound in 3 days

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This year my daughter is going to University at Albany NY State school. Ranked #108 by Money Magazine This Albany school is part of the State University of New York (SUNY) system and, as the name suggests, is located in New York’s capital city. It’s a relatively large school, with about 13,000 undergraduates and an array of opportunities to match. It boasts more than 150 undergraduate programs, some 250 student organizations and over 1,000 study abroad options. UAlbany’s proximity to…

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