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Tag: ms difficulties

My 20 year anniversary with multiple sclerosis

My 20 year anniversary with multiple sclerosis

It just dawned on me, that February 14 was my 20 year anniversary with MS. It was the weekend of February 14 that I was moving it to my house with my ex-husband. My left leg started to feel numb. The numbness started traveling up my leg through my muscles. I wasn’t just numb, my muscles were becoming week and atrophied. It was The following Friday I went to a family doctor who sent me immediately to this neurologist. To…

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Me and my MS got along well on vacation

Me and my MS got along well on vacation

You have to be thankful for the small things. I’m grateful that my multiple sclerosis “issues” were handled effectively for my stay in Florida, despite the heat. I know both my dad and stepmom are nervous. They aren’t around me daily and the symptoms of my MS scare them. It’s more the fears of the falls I think. I did fall but neither of them were in their presence. One was me once again sliding off the toilet. What’s with…

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Physical therapy and exercise with MS

Physical therapy and exercise with MS

It’s that day again…Monday. It comes quickly, doesn’t it? It starts my week to even though I don’t go to work anymore. I start each Monday with physical therapy again. Let me explain physical therapy. Physical therapy is like exercise. I hate it, but I know it’s important and it helps. Therefore I do it with a smile each time. You know those endorphins you are supposed to get when you work out? In the eight years I worked out…

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Patting myself on the back

Patting myself on the back

Go me!!!! My aid couldn’t come today, so I couldn’t go to the pool. I guess I could’ve asked my daughter to come with me, she would have, but I didn’t want to bother her. Instead I got my Beachbody programs on my TV and I did my workout. I haven’t done my Beachbody workouts probably since July, thanks to the shoulder tendinitis. I always refused to let MS tell me what I couldn’t do and amazingly it was my…

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4 Core Stability Exercises for MS

4 Core Stability Exercises for MS

Happy Friday. I had my physical therapy evaluation yesterday. This year it’s all about the core. Or I should say the lack of core. I have four exercises I need to do every day. Very simple exercises, for normal people. However, I’m not normal people. These four exercises are very difficult for me. I was exhausted after doing them. I’ve explained this so many times in this blog, fatigue is not just tired. It’s exhaustion where are your muscles are…

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I’m not drunk I have MS

I’m not drunk I have MS

I have this shirt that says, I’m not drunk I have MS. The shirt always makes me laugh because you really do come across sometimes like you’re completely drunk. I remember when I used to work the reason I disclosed that I had MS was for that very reason. I didn’t want to have to be drug tested at work every day. I just do the goofiest, silliest things that must look humorous to an on looker. I’ve had the…

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How can you find love with MS

How can you find love with MS

You know when you can wake up and know it’s gonna be a bad day? I’ve been on the floor four times already today and it wasn’t from falling. It was for my hands knocking things over and I had to find them to pick him up. I woke up upset because at 4 o’clock in the morning I had an accident. This is the third time that it’s happened while I was asleep.WTF???? Is this going to be something…

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Neurologist visit day

Neurologist visit day

In three weeks is my official diagnosis anniversary of multiple sclerosis. Today I am going to see the doctor that made the diagnosis 20 years ago. I’ve said it before in many posts, I have two neurologists for my MS. One is a specialist in New York City and one is my long time original neurologist that I’m seeing today. People might think that’s ridiculous, why do I need two? The reason I ended up with two is because none…

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Things that go bump in the night

Things that go bump in the night

I had this post written title one other time. I wrote it about being convinced I heard Boomer, my English Bulldog, after he passed away. I realize now that the things that go bump in the night is usually me. The biggest obstacle I’ve had, since I moved in the condo, is I sleep on the other side of the bed then I use to for the last 25 years. I always slept on the left side which, for all…

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Setting of the med-alert again

Setting of the med-alert again

Back in June when I got into the program for the nursing aid, I also received a new med alert. So I’ve had this new one for quite some time and I like this one because the button it’s harder to push. Therefore I have had much fewer false alarms. By fewer, I mean zero. So I finally like this one. When I moved there weren’t many spots I was able to hook it up and so I had to…

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