I always call it a scooter, but technically I guess it’s a wheelchair. I really wanted the hoverRounds MPV5. When I called it was over $4000 and of course my insurance wouldn’t cover it. My thinking was I was going to wait until I became Medicare eligible and get it then. Medicare pays for it. The problem with that outlook is first I’m not gonna be eligible for Medicare until, two years after the start of my disability which is…
This blog was inspired by another MS blogger, who like me, has had this disease along time. Her positive spirit is always an inspiration. https://trippingthroughtreacle.com/2017/11/28/accept-adapt-succeed/ It wasn’t one time, it’s been many times. The first was the day I got my diagnosis. I didn’t understand what MS was. There wasn’t an internet yet I could search. I had to look it up in an old set of encyclopedias that were in my home. It had maybe two paragraphs in the…
What’s your worst and MS symptom, besides fatigue ? At first I would’ve always answered the numbness, but eventually you get used to it. Not used to it in the sense that it feels normal, use to it in the sense that this is how it is. My hands and fingers are so numb all the time. I’ve lost all tactile feeling and sometimes can’t tell the difference between an item that is wet or dry, cotton or silk and…
My birthday is in 2 days. November 22. I haven’t paid much attention to it with everything else going on, could you blame me? It’s tough to go through and pack 11 years worth of stuff. It’s tougher when you have MS. I could hire people to pack and move for me but that’s a lot of money, so I’ve been doing a little each day with my aide. I have only so much stamina in me each day so…
Going to the neurologist are usually a bittersweet day. I really like my neurologist in the city, she is a wonderful doctor. I honestly couldn’t ask for more compassionate, caring and understanding for MS. That being said, there’s limits to what could be done for me. Since seeing her regularly I’m on my third MS drug that I started back in September, which is Ocrevus. I can say that I was on Rituxan prior to this and the changes only…
This will mark my 11 th month being vegan. December is my year anniversary. I went vegan for health reasons, not for the animal cruelty reason. HOWEVER, the only reason I didn’t go because of animal cruelty is because I could NEVER watch something like that and eat again and I know it. I love animals and if that makes me sound foolish or ignorant to the vegan world, I’m sorry. Anyway, vegan opinions set aside, I made the rash…
I’m wearing shorts on October 25th in New York. My windows are open in my house but there is no such thing as global warming. Oh please. This is crazy. https://www.accuweather.com/en/us/new-york-ny/10007/october-weather/349727. In case you actually care, everyday it’s been higher than normal this October. I always said I wanted weather like San Francisco 70 degrees and beautiful each day, guess I’m getting it except we get humidity. Yesterday was so humid and MS doesn’t like humid. It’s like starting five steps…
Good morning. I am not sure where my post is going to go today because I have no idea what I want to say. I have a headache again. I’ve been getting them more and more frequently. Luckily they have been going away with ibuprofen but I’m on medicine everyday for headache/migraines, why am I getting them? They were really bad when I was sick last week but I had one yesterday and now I have one today. I guess…
You might be asking, why does it matter that I’m taking Ocrevus and I have a cold? It’s important to remember what Ocrevus does. Ocrevus depletes B lymphocytes, a white blood cell in our immune system. Ocrevus is an autoimmune suppressing drug. Something as simple as a cold, may not have the same effect on me as it does the person I caught the cold from. For me, this cold has put me in an psuedo-MS attack. A pesuedo-attack is…
I think it’s finally official, the fall has finally come to New York. For all those who don’t believe in global warming him, it was 77° in New York yesterday and it was warm and humid. It was gross. For people with multiple sclerosis, or at least me with multiple sclerosis, it’s the worst weather I can deal with. I wait every year to get through the summer and it just seem like this one never would end. My air…
