I’ve been absent again. I have just had a lousy few weeks. I have had a shitty year. If you have read my blog, I have that well documented. I’m tired of dealing with all the issues that keep occurring week in and week out. I just feel like I have not had one month where I wasn’t dealing with some issues. From sickness to bedbugs back to my chronic stomach issues, I honestly feel like I can’t catch a…
I got a Covid booster and flu shot on Saturday. I was down for the count for almost 2 days. I’m doing better now. I thankfully made the decision to cancel occupational therapy for the morning. I was feeling better but I think I still needed the day to recoup. I didn’t even exercise, you know that’s saying a lot for me. As I laid in bed somewhat sleeping Monday morning, my new aide once again showed up an hour…
I have a question for my multiple sclerosis readers, how often do you come across other MSers on the same path as you? I have met many people with similar symptoms. I talk to many who were even diagnosed somewhat similarly. I don’t speak to many who have had the same progression path as me. There are always the similarities in the symptoms we face at certain points. The symptoms of MS are somewhat common as the disease progresses, at…
I’ve dealt with multiple sclerosis for 24 years yet I can still be surprised by its symptoms. You’d think I wouldn’t be shocked anymore. I had to spend most of my afternoon in my comfy chair. The exterminator was coming back, to treat my room, for the third time. It seems that the guy who boasted about his 12 year experience with bedbug, still missed the bedbugs alive in my room. He reported seeing nothing after I told him specifically…
I was thinking this weekend about when I worked. I’ve read a few MS blogs where people discussed when, if ever, do they disclose their disease to their employer? If you are new to my blog, I was diagnosed with multiple sclerosis when I was 26. I’m 50 years old now. I became disabled when I was 44. That left a lot of years when I worked. I held my last position for 13 years with the same company but…
Happy hump day. Another day, another week. This week was a little different for me because my daughter is home for a visit. I love having her home. I love her energy in the house. I love how she climbs into my bed when she wakes up and is always in my bed before I go to sleep. I miss her when she leaves until I get use to her being gone again. Right now I get to enjoy her…
I am going to attempt to play mahjong today with the girls. This will be my first time since December. I am looking forward to playing. I also hope I can play. It would be a shame if I am still too weak to play. I have had enough reminders as to where I am today as opposed to where I was. Mahjong is my favorite and I really don’t want to be discouraged by something else. I put off…
I took a nap yesterday. First time I did that in ages. I didn’t sleep well the night before. I knew I needed more sleep. I kept my pajamas on and stayed under my blanket. I spoke to everyone I wanted to talk. I text my daughter and mom to let them know that I was going to sleep. I even put my phone on do not disturb. Thankfully, the house phone didn’t ring through out the afternoon. I appreciate…
I am still running on empty this week. It is very strange, I walked the furthest I walked on Monday. Wednesday and Thursday I’ve had difficulty standing up and transferring. When I say difficulty, I mean it’s been harder than it’s had been over the previous weeks. It is requiring more energy to get myself up into the standing position. It is more laborious moving my feet. Good MS days and bad days. I have had some pretty intense workouts…
Some days are better than others. I walked the hallway again yesterday and it was so hard. Ok, it was hard the first time I did it but it was so much harder yesterday. My right leg, which is normally the leg that gives less issues, was very difficult to move. It was difficult from the hip flexor. I had problems moving the leg forward. My left leg, which normally drags, has difficulty clearing a step without my foot impeding…
