I have said so many times that I really didn’t know what I was doing when I started my blog. Guess what, I still don’t. Other than the basic stuff on WordPress, I’m pretty much clueless. I just like to write. My English teacher’s would be shocked. I like to share. I like to tell about my experiences and hope that they help someone else. I never expected the help having this blog would be for me. The support I’ve…
I haven’t talked about my MS in so long. It hasn’t been too bad, thankfully. I did end up on the floor after I worked out in the evening. Totally Rocked This I had this great work out but it did make me extremely tired and my recovery wasn’t quite on point. So transferring into my wheelchair didn’t go so well. I didn’t panic, or cry. It took me a little bit but I eventually got myself up and I…
Sometimes I even shock myself. Lagging all day. The only thing I ate was plain matzo with some grape jelly. I close my eyes quite a few times but never slept. yet everybody leaves my house, it’s all quiet, and I put on my workout gloves and work out. Not only did I work out but I had a great workout. That just makes me so happy. Do you have an average heart rate of 126, I mean that rocks….
I had a rough night. I had a very upset stomach. It’s 10:00 in the morning and I already completed 8/12 standing. Every part of my body aches but my stomach feels better. I haven’t slept and wasn’t able to fall back asleep. I was consoled the whole time by my little Zoey. Cuddled up next to me ❤️❤️. MS doesn’t help without sleep. I will drag myself through the day. Good thing I have nowhere to go still. I…
I saw this somewhere in the midst of the virus outbreak and have wondered about it ever since. If I have an overactive immune system why am I in such a quarantine from this virus? According to my neurologist, it is because of Rituxan. I take a medication that wipes out a strain of my white blood cells. I can understand that. It makes sense. It was another blogger who made the comment that they very rarely get sick. It…
I’m not sure what exactly is going on with my bladder these days. I know I have issues, had them for years, but they’ve seemed somewhat worse over the last few weeks. I am not sure if I don’t have some kind of bladder infection. The problem is that is varies day to day, something bladder infection tend not to do. However between my water pills and Toviaz, who knows. Urinary tract infections don’t always cause signs and symptoms, but…
I haven’t been sleeping great. I’m up all night either using the bathroom or unable to get the right temperature. However I still wake up in the morning pretty bright eyed abs chipper. Starting each morning with some puppy love helps that situation. I’ve put in some great workouts in the AM. Yesterday I did 52 minutes. That pretty intense especially since I didn’t go to bed until after 10:00. That’s when I realized that I’ve been doing really good…
Well sometimes my MS issues lead to funny outcomes. I got my mom to bake Mandel Bread. These are cookies very similar to biscottis. It is one of those recipes passed down through the family for a long time. It use to be so hard to get the dough mixed so we never made them often. Then mom got this great mixer and she can make them in record time. After she cleaned every closet and draw in the house…
It really isn’t ALL my fault. You see these are the tires of my wheelchair Those big ones up front give the wheelchair the power but the tiny ones in the back give the direction. I can’t see them and if they are pointed one way and I hit the directional another way, that doesn’t mean I’m going the way I want to go. I’m going the way those tires in the back are pointing first. They steer the wheelchair….
For my wheelchair evaluation, I’m going out…my wheelchair evaluation my neurologist needed to submit a letter of need. Due to the coronavirus, we did this via teleconference the second week of April. He’s been my neurologist for 22 years. He has files upon files upon files on May. We laugh, actually, at how many times my files have been thinned and moved to storage. My file still always remain as thick as medical encyclopedia. I explain this so you know…
