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Tag: ms life

Running on empty

Running on empty

Man I am beat. I am so tired and I’ve really done nothing but what I’ve done is enough to exhaust me. July has certainly has been a very tough month for me. It started out with my insurance changing to Medicare. Goodbye referrals!!! However, I also had many doctors appointments appointment scheduled because of it. Then I ended up with cellulitis at the beginning of July. July 9 actually was my first trip to the emergency room. I know…

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2nd medical insurance assessment for home health services

2nd medical insurance assessment for home health services

My agency where my aid comes from that I been using for over a year is not acepting my insurance anymore. I have the option to change insurance companies and continue to use my agency or I just have to find a new agency. Right now with my current insurance, I receive five days a week, eight hours a day of home health aid services. I had an assessment last week and where they only offered me five days a…

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It was a tough weekend

It was a tough weekend

Where to begin. Saturday on my way to a lovely, relaxing nail appointment, when I opened my condo door I was greeted with five movers to my across the way neighbors condo. They were moving. That wasn’t the issue, it was my dog Marshy who saw them too and bolted. I was unprepared. He took off down the corridors of my condo. It’s not like I could run. I can barley walk. I’m trying to keep Zoey in the condo…

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High dose biotin

High dose biotin

Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…

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High dose biotin

High dose biotin

Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…

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Regulating body temperature with MS

Regulating body temperature with MS

I almost forgot this fact, well slightly forgot this fact. However my multiple sclerosis let me know it is still here in abundance. I got that crazy symptoms yesterday where I couldn’t regulate my body temperature. I’m sitting on my chair inches away from the AC and sweating. Sweat was literally dripping down my neck. Why? I wasn’t even moving. Normally this happens after I eat maybe something a little hot, this time it happened for no apparent reason. Guess…

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Ocrevus and the compromised immune system

Ocrevus and the compromised immune system

I’m happy to report I was discharged from the hospital last night. One thing I know, from my career working in nursing homes, hospitals like to discharge on Friday to make room for the weekend influx. The infection disease doctor would have held me to today but I really wanted to go and the main doctor was for it. So what did I learn from this? First of all this happened from a simple fall. The fall gave me a…

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Live from my hospital bed

Live from my hospital bed

So I ended up being admitted to the hospital. MS for 20 years and a little fall causes cellulitis and a skin infection and I ended up admitted. Last time I spent a night in a hospital was 19 years ago giving birth to my daughter. Same hospital I might add. I had a horrible night because of all the fluids they are pumping in my veins via IV caused me to need the bathroom often. Wouldn’t be terrible if…

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A swollen calf, cellulitis, a fall and MS

A swollen calf, cellulitis, a fall and MS

I’d love to say my saga is over, but I have a very bad feeling it’s not. I’ve been on my antibiotics for two days and the pain, which i thought subsided slightly, has not and my calf has swelled up tremendously. That’s causing a lot of pain. Something is very wrong!!! I think I’m going to have to go back to the ER later. I know this is crazy but they’re coming to do my windows this morning and…

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Migraine day 4

Migraine day 4

This will be brief because I don’t have too much energy for concentration. I just can’t get out of the migraine cycle. I took my migraine pill yesterday didn’t help. Took it again today and that’s really not good. I take a preventative medicine for migraines, Topiramate. I’ve been taking Topiramate for 4 years increasing from 25mg to my current dosage of 75mg. My doctor just increased the dosage and the times I take it. Now I’m taking 100mg but…

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