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Tag: ms over 10 years

I’m scared of this MS symptom

I’m scared of this MS symptom

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I’ve written about this before but it happened again yesterday and it really scared me. https://multipleexperiences.org/2017/01/23/multiple-sclerosis-serious-symptoms-respitory-issues/ I woke up not feeling well. I had this heavy feeling in my chest. Not like the MS hug symptom which is the tightening feeling through your chest like congestion, simple congestion in my chest. I just couldn’t produce a cough that would move the mucus up and out. I spent the whole day trying to cough, using my Doterra oils and drinking tea…

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Happy Anniversary Multiple Sclerosis

Happy Anniversary Multiple Sclerosis

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It’s Valentine’s Day here which always marked 3 things for me: The lover’s or lack of one Holiday The weekend I moved into my first house with ex-husband The start of a major MS attack that lead to my diagnosis less than a week later Today marks 21 years ago that I was diagnosed with MS. Crazy!!! Almost half of my life I’ve spent with MS. It is hard to remember the times without the disease. Maybe that’s why I…

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My life today

My life today

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I never thought at the age of 47 this would be my life yet I remember being scared when I was diagnosed of being in a wheelchair. I knew what multiple sclerosis could bring about and I feared that when I hit the 10 year mark everything would go downhill rapidly. That wasn’t the case because there were medication developed that helped to slow down the MS progression and more and more have been developed. My life took on a…

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Monday madness

Monday madness

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First time back in physical therapy today. I should get double activity points on my Fitbit from this and it registers as nothing. I was there for almost 90 minutes and it’s all exercise that it so difficult to do. I mean I’m struggling doing leg lifts with a 2lb weight on my ankle. My sit to stands needed assistance from the therapist so I could either get up from the chair or not fall over once I’m standing. Then…

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Multiple sclerosis set to mild for the week

Multiple sclerosis set to mild for the week

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I’ve had a week to rest since my vacation and I have to say I needed it. I did do my Beachbody Cize workouts every morning. I did get food delivered and cooked. I did reorganize myself,but other than that, I rested. Today I’m going to occupational therapy. This is the easier of the therapies for me because it doesn’t normally wipe me out for the day. I can’t complain my MS symptoms have been somewhat mild this week. Yes,…

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Ocrevus, Rituxan not new drugs

Ocrevus, Rituxan not new drugs

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I received an email yesterday about a new drug for progressive MS called Ocrevus. https://www.cbsnews.com/video/new-drug-provides-hope-for-those-suffering-with-ms/I don’t get it, I’ve been on Ocrevus for almost 2 years already. Is it really still new news? I wish I could rave about this drug that it has done wonders for me, but it hasn’t. I haven’t had any relapses and for that I am thankful but it certainly hasn’t halted my progression. I am worse today than I was two years ago. That…

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Shoes and sneakers

Shoes and sneakers

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I have such issues with shoes now. I miss the days I could wear my boots with chunky heels. I never could wear stilettos but I could get away with those. Now I can only wear sneakers or wide shoes that are completely flat. I use to wear Keds sneakers all the time. Quick slip on shoes that I had no issues putting on myself. Now, thanks to swelling that is still unexplained, they are too small. I wear my…

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Spinal Cord Lesions with MS

Spinal Cord Lesions with MS

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My neurologist from early on has done MRI’s of my spinal cord. It is where most of my MS activity has been over the last 21 years. My first major attack back in 1998 left a large lesion in my brain but since than it has really all be spinal cord. So what does that mean? Well I asked my doctor the same question. He said spinal cord is why I have no cognitive issues as I’ve progressed. He also…

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A reminder how long I’ve had multiple sclerosis

A reminder how long I’ve had multiple sclerosis

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It’s was my routine checkup with my neurologist today. One month shy of my 21st anniversary of my multiple sclerosis diagnosis. This appointment was with the neurologist that made that diagnosis 21 years ago. He knows me well. My folder is very thick and over the years it has been thinned out and moved into storage. Every time I see my file it is a reminder how long my history with this disease has been. 21 years. I ignored it…

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This week at physical therapy-strengthening the core

This week at physical therapy-strengthening the core

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I asked in therapy about the issue I had in mahjong last week https://multipleexperiences.org/2019/01/04/couldnt-hold-myself-up/ with holding up myself up. We discussed the issue with my weakened core muscle. I’ve had multiple sclerosis for almost 21 years and it was my core region that was on of the first things effected by MS that never got better. It an area that has always given me issues and has always been an area we work on in therapy. A while ago I…

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