I had another rough night. This time I was alone. My daughter has been home for two months and the one night she’s out I really needed her. Unfortunately in my exhausted state, I fell. Not only did I fall but I was in a very bad spot. I was now exhausted and helpless. Not a good place to be. I spent a lot of time and energy maneuvering myself into a position of hope. Hope that I could possibly…
When you live with a chronic illness I think you start to hate that question. People ask it all the time but they really don’t want the actual answer. Trust me, we very rarely actually respond with the truth. My go to answer is I’m doing ok. I can’t say good anymore because that is just too much of a stretch. I just answer with a vague I’m doing ok and change the subject, how are you doing? What is…
I haven’t talked about my MS in so long. It hasn’t been too bad, thankfully. I did end up on the floor after I worked out in the evening. Totally Rocked This I had this great work out but it did make me extremely tired and my recovery wasn’t quite on point. So transferring into my wheelchair didn’t go so well. I didn’t panic, or cry. It took me a little bit but I eventually got myself up and I…
I’ve had so many blogs about this topic. Regulating my body temperature is not going well these days. It can be very frustrating. The sweating happens a lot after i eat. It is because my food is hot. The hot food causes my body temperature to rise and then I start sweating. Really makes no sense. Most normal people eat a hot meal and don’t have any issues. Not me, I eat, I get overheated. WTF!!! It happens all the…
I did well yesterday My words are my actions. I managed to use the walker until after 2pm. I completed 3 sets of 10 squats but I can admit I pulled myself up on the last few. I was done!!! I’m happy to say that I recovered and had strength to get myself up into my bed without assistance and without lowering the bed to the flat position. I was proud of myself. My daughter comes into my room every…
One thing I can say about myself is I’m not a slacker. If I say I’m going to do something, I’m going to do it. I wrote about my weakness in my legs the other day My muscles are getting weaker. In the blog I realized I had to do something. So I first thought on safety. I can’t fatigue myself to the point I can’t transfer. My daughter has been so helpful when my aid isn’t around but she’s…
My spasms have been extremely annoying lately. I have a few different types and it depends what it hitting when. My back has probably been the most frequent. It starts with this warm feeling that spreads across my back and reaches from left to right. It continues to my right hand where it paralyzed it for a second. Then I have the one in right hamstring. This one you can feel building up. It’s like you welcome the spasm when…
I’m happy to report that I have no blisters today. I had three little red marks last night that looked almost like welts. This morning I only saw one. I can’t even begin to tell you the relief that was for me. I will be able to continue Rituxan until something better comes along. That isn’t the greatest statement but it is better than the alternative of putting me on a drug that might not work for me. The infusion…
I had a nurse evaluation yesterday for the agency. Nothing shocking, mostly paperwork stuff. My medications were listed for the dosage and times I take them. I’m taking 9 different medications at 48 years old. That’s a lot of pills. If you include the vitamins it’s 17. A crazy number yet they all serve a purpose and that’s what the evaluator and I were discussing. Most I take at night because they cause drowsiness so I got the warning about…
Day two of waking up and not feeling tired. I can’t even put into words how great that is. I am starting to feel more like myself. I still was in bed by 8 yesterday and sleeping before 9. I also had no strength in my legs and had to transfer directly from my wheelchair to my bed. Yet all that is ok because I woke up peppy and smiling. I woke up in good spirits with energy and it…
