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Tag: ms over 20 years

Self-love day 6- Doctors, doctors and more doctors

Self-love day 6- Doctors, doctors and more doctors

I’ve been eating right, exercising and going to the doctor as needed. A few weeks ago I saw my specialist for MS. I’ve been seeing a podiatrist for the fungus and the swelling blisters on my toes. Today I’m off to the vascular doctor to discuss the swelling in the extremities and see if I can get any answer to that. Then I have to make the decision if I want to go to the endocrinologist and go further to…

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Self love day 5- thank you letter to my body

Self love day 5- thank you letter to my body

Dear body, I’ve never said thank you. I’ve never appreciated the amazing things you do without me even thinking about it. You breathe without me thinking about it. Each breath is taken without the thought process first. How amazing is that? Food digest and eliminates just by your own functions. Blood is circulated from my head all the way to my feet and back up to my heart and I don’t do anything about it. The functions of the human…

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Self love day 2- I rock!!!!

Self love day 2- I rock!!!!

One thing I can say for myself, is I never let MS dictate what I can or can’t do. When I was married I bought a treadmill. I’m sure you can guess, it wasn’t long before that treadmill became an extension of my closet. Clothes ended up being tossed over it more often than the treadmill was ever turned on. After my divorce I made the decision to buy an elliptical. In that decision I also made a deal, I…

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A blog challenge on self love day 1

A blog challenge on self love day 1

My life coach challenged me to write blogs showing self love. It’s been something I’ve been struggling with lately. Who am I kidding, it’s something I’ve struggled with my whole life. I can self love from the neck up, I’m pretty horrible from the neck down. I judge myself very harshly based on my weight and I always have. I thought my weight gain might of leveled off and now I’m not so sure. It’s been disheartening to say the…

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This is how we roll

This is how we roll

I’m doing Zumba this morning. I decided to do one of the longer programs which means I’d be sitting soon. I now sit on my big comfy chair, at the edge, because first I could see the doggy pad and keep an eye on what Zoey is doing, and second because I find my comfy chair has a little bounce so it helps me bop. I got tired fast doing Zumba so I sat after the third song, but my…

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Overcoming Multiple Sclerosis – OMS

Overcoming Multiple Sclerosis – OMS

I need to thank Jen from Tripping through Treacle’s http://trippingthroughtreacle.com/ Who reminded me of this. If you haven’t followed my blog, for almost a year I became vegan. I did it for health reasons. I wanted to see if it made any difference in my multiple sclerosis. The real reason I ended up stopping is because for some reason I started putting on weight. I ended up joining weight watchers and at the time being vegan was very difficult to…

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Swimming, swimming in the swimming pool

Swimming, swimming in the swimming pool

It’s Friday. Happy Friday to everyone. It’s a gloomy day again in New York. That’s OK I’m happy to report I don’t need to go out today. I’m going Swimming though. I’ve been doing laps in the pool. LAPS!!!! I wasn’t able to do that a few months ago. I was hardly able to do a stroke. LAPS!!!! It’s exciting. The truth is my body remembers how to swim even though I haven’t tried it in years. . My feet…

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I swallowed my pride and bought pants in a bigger size

I swallowed my pride and bought pants in a bigger size

I think I could just write the title and stop there. It was a big deal for me. I worked very hard to get into the size 8 that I was. More importantly I stayed in that size for eight years. I still have no answers to what’s going on and why my weight keeps coming on the way it is but it is but I can’t stop it. I’m doing all the right things and it’s just not coming…

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Update on the European withdrawal on high dose biotin application

Update on the European withdrawal on high dose biotin application

As promised it was the first question I asked my neurologist. She explains that the study had 93 people in it. According to the study, over the course of a year, of the 93 people enrolled something like 20 of them had relapses that I never had a relapses before. That’s why they deemed that the high does biotin was not effective. This is the information on the application for the withdrawal. http://www.ema.europa.eu/ema/index.jsp?curl=pages/medicines/human/medicines/004153/wapp/Initial_authorisation/human_wapp_000247.jsp&mid=WC0b01ac058001d128. Well my doctor explained that she, as…

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No questions for my neurologist

No questions for my neurologist

My mother sent me a text yesterday to write down the questions I have for the neurologist. It’s been 20 years, what questions do I still have for the neurologist? I know the research, I know what’s out there and I know what I’m on. Unfortunately, there is nothing for secondary progressive and therefore there is nothing that will stop the MS progression at this point. I’m very positive, but I’m also a realist. I’m not gonna run around with…

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