Question, do you snap at people when you’ve hit your limit? When all my energy is gone and I’m completely exhausted, I’m known to loose my patience. My fuse is short and I can snap easily. My daughter knows this all to well. It is just like my brain can’t handle anything else in that given moment and all my positivity and mental reasoning goes out the door. I wouldn’t say it happens often anymore but it does happen. I…
Occupational therapy kicked my ass today. I knew my first day back would be rough but wow, that was super duper tough. He started with these tiny little beads I had to put onto a shape. He let me do this with my hands. How nice of him. I had a star shape. This consumed the first 30 minutes of therapy. Trying to put those teeny tiny beads on the teeny tiny holes with my left hand. I was only…
Happy Monday. My aid just told me I look tired. I’m always tired. I can sleep for 24 hours and I’d still wake up tired. I just did my little cardio workout but i was tired. It doesn’t ever matter, I’ve just learned to push through the feeling as I have always done. I bought a treadmill way back when I was still married living in my house. It was used for a total of a month tops before it…
I was reading an article yesterday about the life expectancy of people with autoimmune diseases. https://health.usnews.com/health-care/patient-advice/slideshows/autoimmune-diseases-that-can-be-fatal. Of course there was a section dedicated to multiple sclerosis. This said on average life expectancy of someone with MS is 7 years less than the average person without the disease. I’ve heard this number before but it doesn’t make me very happy. My thought is why? Why would MS shorten our life span? Other than complications from the more serious symptoms of MS…
So I went yesterday for an occupational therapy evaluation at the same place that I’ve been going to therapy for the past four years. However I only participated in OT last year. I never realized I could do both. When my insurance ran out last year I actually took a break for the first time. Normally when my insurance runs out I go on their maintenance program but this time I just decided to continue doing my own exercising at…
I knew I shouldn’t write that about falling. I was playing mahjong yesterday and we were actually playing here in my building. It was one of those days where I was just not holding up very well in the game and I was having difficulties keeping up right. OK, it happens. I wasn’t going to stop playing because I was so happy. I haven’t played in so long. my bladder has been really cooperative and I don’t normally have to…
So far so good. I probably shouldn’t say that, I’ll jinx myself. I’ve been fall free for a few weeks letting all my bruises finally heal. Although I must admit to a bad MS day yesterday that put me in a bad mood. I once again took off a handle on my kitchen cabinet with the wheelchair and marked up a wall. I’ve had this kitchen cabinet repaired twice already. It is just frustrating sometimes in the wheelchair because the…
Not a bad place to be to write a blog post. It is a rare morning because it is actually only my sister and myself awake at this moment. She is in one chair reading her book with a cup of tea, I’m in the other with writing with a cup of coffee. It is so beautiful up here. She lives about 2 1/2 hours away from me in upstate New York. If we continued another 45 minutes we’d be…
Interesting new breakthrough in multiple sclerosis treatment. This one was new for me so I had to post it for my readers. It isn’t stem cells or B-cell blockers, it is about the cell that turns on in MS that attacks the body. It is about regeneration of damaged tissue. This is the kind of medicine that can help me one day and gives me hope. See the full article here:https://theheartysoul.com/cambridge-scientist-on-verge-of-curing-multiple-sclerosis/?utm_source=3amp The Potential Cure After discovering a small binary switch…
Isn’t it crazy how fast November and December go? It always amazes me. It was just my birthday at the end of November and now I’m planning my trip to go to my sister which is always for Christmas. We’re leaving in a week from Sunday. This has become our families thing to do every Christmas holiday. We go to my sister in Saugerties and spend that week with her and her husband. Now it’s her husband, her and her…
