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Life expectancy with Multiple Sclerosis

Life expectancy with Multiple Sclerosis

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I was reading an article yesterday about the life expectancy of people with autoimmune diseases. https://health.usnews.com/health-care/patient-advice/slideshows/autoimmune-diseases-that-can-be-fatal. Of course there was a section dedicated to multiple sclerosis. This said on average life expectancy of someone with MS is 7 years less than the average person without the disease. I’ve heard this number before but it doesn’t make me very happy. My thought is why? Why would MS shorten our life span? Other than complications from the more serious symptoms of MS…

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Occupational therapy evaluation

Occupational therapy evaluation

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So I went yesterday for an occupational therapy evaluation at the same place that I’ve been going to therapy for the past four years. However I only participated in OT last year. I never realized I could do both. When my insurance ran out last year I actually took a break for the first time. Normally when my insurance runs out I go on their maintenance program but this time I just decided to continue doing my own exercising at…

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Getting to know a new bathroom floor

Getting to know a new bathroom floor

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I knew I shouldn’t write that about falling. I was playing mahjong yesterday and we were actually playing here in my building. It was one of those days where I was just not holding up very well in the game and I was having difficulties keeping up right. OK, it happens. I wasn’t going to stop playing because I was so happy. I haven’t played in so long. my bladder has been really cooperative and I don’t normally have to…

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A day off from MS, my one wish

A day off from MS, my one wish

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So far so good. I probably shouldn’t say that, I’ll jinx myself. I’ve been fall free for a few weeks letting all my bruises finally heal. Although I must admit to a bad MS day yesterday that put me in a bad mood. I once again took off a handle on my kitchen cabinet with the wheelchair and marked up a wall. I’ve had this kitchen cabinet repaired twice already. It is just frustrating sometimes in the wheelchair because the…

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Making my disability work in new environments

Making my disability work in new environments

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Not a bad place to be to write a blog post. It is a rare morning because it is actually only my sister and myself awake at this moment. She is in one chair reading her book with a cup of tea, I’m in the other with writing with a cup of coffee. It is so beautiful up here. She lives about 2 1/2 hours away from me in upstate New York. If we continued another 45 minutes we’d be…

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Meet the Cambridge Scientist on Verge of Curing Multiple Sclerosis

Meet the Cambridge Scientist on Verge of Curing Multiple Sclerosis

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Interesting new breakthrough in multiple sclerosis treatment. This one was new for me so I had to post it for my readers. It isn’t stem cells or B-cell blockers, it is about the cell that turns on in MS that attacks the body. It is about regeneration of damaged tissue. This is the kind of medicine that can help me one day and gives me hope. See the full article here:https://theheartysoul.com/cambridge-scientist-on-verge-of-curing-multiple-sclerosis/?utm_source=3amp The Potential Cure After discovering a small binary switch…

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It’s almost Christmas time at my sisters

It’s almost Christmas time at my sisters

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Isn’t it crazy how fast November and December go? It always amazes me. It was just my birthday at the end of November and now I’m planning my trip to go to my sister which is always for Christmas. We’re leaving in a week from Sunday. This has become our families thing to do every Christmas holiday. We go to my sister in Saugerties and spend that week with her and her husband. Now it’s her husband, her and her…

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My back can’t always hold me up anymore

My back can’t always hold me up anymore

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I slept so good last night. I went to before 10:00 and slept through until 4am. Then went back to sleep until almost 9. That’s some quality sleep right there. I was woken up by my dogs running to greet my aid coming through the door. Otherwise I might have slept even longer. Guess I was tired. I’m always tired. Today is mahjong. I love mahjong but I didn’t hold up so well last week. Actually let me rephrase that,…

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Numbness in the hands

Numbness in the hands

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I’m hanging with the puppies again Look I even included a makeup free version of myself. I just had my hair done yesterday so I must say the color looks fabulous though my hair needs a little straightening help. However my sweet ZoZo looks very cute on my shoulder and I had to show the picture. That’s where she loves to sleep. Marshy is sprawled across my lap. This is most mornings for me when I’m writing my blog. I…

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Swimming difficulties with multiple sclerosis

Swimming difficulties with multiple sclerosis

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Good morning world. Happy Monday. It’s a dreary one here in NY, raining. That’s ok I was home today anyway. I am about to doing of my exercise programs and I’m still deciding which one to do. I might let my aid pick since I force her to exercise with me when I exercise in the house. Sometimes I purposely don’t go swimming because I want her to exercise. However I have to admit something about swimming, it’s been getting…

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