I did something yesterday I haven’t done in at least 15 years. I went down to Long Beach and went down the boardwalk. I met a friend who lives right on the ocean front in one of the many beautiful buildings down in Long Beach. She met me on her scooter. Took me to park my car. Put together my scooter and away we went. We went down to from her building to the west ends end of the boardwalk….
Yesterday was a tough day. I went future tripping on the complete unknown of MS. I’m got very worked up and scared of the possible needs of my future when my daughter goes to college. From that point I went into a complete state of panic, sadness and the feeling of being overwhelmed. I cried throughout most of the day to just about anyone I spoke to. It was a mentally and physically debilitating day. i woke up today put…
1. I still have MS 2. Time goes very fast each day 3. The real housewives of any state have a lot of drama in their lives 4. Ive become a hibernating bear in the summer instead of the winter 5. My dogs like it that I’m here or at least that is what I choose to believe 6. I found life needed to be de-cluttered starting with my house 7. I found that I’ve become a great companion to…
I’m going to my neurologist today that the specialist just the regular neurologist. The same one I’ve gone to for 18 years. The same one that diagnosed me. The one I’m most comfortable with. Lately I’ve been noticing I’m having problems remembering words and peoples names even though I might have just talked about it. I find that things aren’t leaving my head quick or the words are there but just can’t reach them. It’s a little scary. I…
MS fatigue one of the most difficult symptoms to explain and deal with. 80% of all MS patients deal with this at some point or another. Fatigue is way past a feeling of tired is to the point of absolute exhaustion. It’s the feeling that each limb is 100lbs heavier than it is. Just walking the few steps to a bathroom is daunting and overwhelming. It never fails you’ll be talking to a friend and you’ll say I’m tired…
Home – The Mystic Jesus I belong to a few MS websites that offer community support for people with MS or their families. I’m sure that most diseases have websites for this. That in itself can be a blog topic but we will let it go for today. One post has been in the back of my mind since I saw it. The caption read “MS ruined my life”. Now I’m the first to admit I’ve had bad days with…
Everyday we live it. We deal with the feelings, lack of feelings, the daily challenges and frustrations. However how we do we affect our loved ones around us? I can’t talk about husband because I don’t have one anymore. I can talk about my daughter who takes on a big chunk of the weight because she lives with me but I’m not. I want to talk about the parents. My parents divorced when I was 4. My mother remarried when…
Two chairs, two yoga blocks, one strap I don’t know what to do with and one dog toy dropped off by my marshy when I finally collapsed on the floor. First let me say Tony Horton YogaX kicked my ass. He has you do vinyasas between every move. Is this a normal thing? Oh and he’s so gracious that you can do a push up if you’d like. If I’d like? I could barley do a downward dog. Well I have…
