I had a great week with my family and now I’m home. I am back in my normal environment. I’m back where everything is set up specially for me and my disability. I must say there is a certain relief I feel being home. I feel more secure in my own space. I know it is normal, this is my home, set up for me, by me, to meet my everyday needs. Of course I’d feel more secure here. Yet…
Not a bad place to be to write a blog post. It is a rare morning because it is actually only my sister and myself awake at this moment. She is in one chair reading her book with a cup of tea, I’m in the other with writing with a cup of coffee. It is so beautiful up here. She lives about 2 1/2 hours away from me in upstate New York. If we continued another 45 minutes we’d be…
It’s 8:10 in the morning and I have already cleaned up after the puppies, fed the those furry munchkins, completed my work out and cleared off all my email. Why do you ask have I done so much so early in the morning? My baby, who came home late Wednesday night, had to leave for the airport. She goes to her dad for the Christmas holiday and will be back on Thursday. Unfortunately, her dad always seems to schedule these…
Isn’t it crazy how fast November and December go? It always amazes me. It was just my birthday at the end of November and now I’m planning my trip to go to my sister which is always for Christmas. We’re leaving in a week from Sunday. This has become our families thing to do every Christmas holiday. We go to my sister in Saugerties and spend that week with her and her husband. Now it’s her husband, her and her…
I slept so good last night. I went to before 10:00 and slept through until 4am. Then went back to sleep until almost 9. That’s some quality sleep right there. I was woken up by my dogs running to greet my aid coming through the door. Otherwise I might have slept even longer. Guess I was tired. I’m always tired. Today is mahjong. I love mahjong but I didn’t hold up so well last week. Actually let me rephrase that,…
I’m hanging with the puppies again Look I even included a makeup free version of myself. I just had my hair done yesterday so I must say the color looks fabulous though my hair needs a little straightening help. However my sweet ZoZo looks very cute on my shoulder and I had to show the picture. That’s where she loves to sleep. Marshy is sprawled across my lap. This is most mornings for me when I’m writing my blog. I…
Good morning world. Happy Monday. It’s a dreary one here in NY, raining. That’s ok I was home today anyway. I am about to doing of my exercise programs and I’m still deciding which one to do. I might let my aid pick since I force her to exercise with me when I exercise in the house. Sometimes I purposely don’t go swimming because I want her to exercise. However I have to admit something about swimming, it’s been getting…
My neurology visit was uneventful yesterday for the most part. He did a quick exam and during the exam he said I always forget how myelopathic your MS has always been. He always says that to me. First I had a remember what myelopathic meant and then I remembered what he meant. Myelopathic is referring to the spinal cord. What my doctor means is that my MS is in my spinal cord not in my brain. All my symptoms fall…
It’s Friday and I’m exhausted. A shocking statement from me, right? Why do I feel like this week was so long? It just feels like I did a lot this week when I really didn’t. I am not even done. I’m off to my neurologist this morning. This is my normal MS neurologist, not the specialist. Neurologist was as expected. This is my neurologist that diagnosed me almost 22 years ago. He treats me more for my various symptoms where…
