These days come fast, don’t they? I have to say, it’s been very busy for me. Good busy buying stuff for my new condo, but busy. I’m exhausted and it’s Monday I didn’t even do anything. I was out both days this weekend shopping. I had buy new locks the door. May not sound like such a big deal, but I have multiple sclerosis and it’s getting worse. I fumble a lot with keys and sometimes the dexterity in my…
The first piece of me was added to the condo yesterday. My light fixture over my dining room table. This is a terrible picture because it looks gold in this yellowish light but it’s silver. It actually looks like this. In the condo she has these lights with lamp shades makes everything look yellow. Today my step dad and I are going to Home Depot to pick out new door locks and sconces. On a side note yesterday was the…
This blog was inspired by another MS blogger, who like me, has had this disease along time. Her positive spirit is always an inspiration. https://trippingthroughtreacle.com/2017/11/28/accept-adapt-succeed/ It wasn’t one time, it’s been many times. The first was the day I got my diagnosis. I didn’t understand what MS was. There wasn’t an internet yet I could search. I had to look it up in an old set of encyclopedias that were in my home. It had maybe two paragraphs in the…
What’s your worst and MS symptom, besides fatigue ? At first I would’ve always answered the numbness, but eventually you get used to it. Not used to it in the sense that it feels normal, use to it in the sense that this is how it is. My hands and fingers are so numb all the time. I’ve lost all tactile feeling and sometimes can’t tell the difference between an item that is wet or dry, cotton or silk and…
My birthday is in 2 days. November 22. I haven’t paid much attention to it with everything else going on, could you blame me? It’s tough to go through and pack 11 years worth of stuff. It’s tougher when you have MS. I could hire people to pack and move for me but that’s a lot of money, so I’ve been doing a little each day with my aide. I have only so much stamina in me each day so…
When I was at my doctor the other day, I was explaining some of my symptoms. I thought I possibly my optic neuritis was acting up. My very first MS symptoms was optic neuritis. It was in my right eye and it was like a huge sunspot in my field of vision. I had it once very mildly in my left eye, same thing but much less intense. I believe I had one other issue in my right eye over the…
If you’ve never read my blog before, I invite you to look through the search box and find my numerous posts on biotin. If you don’t want to take my word, this is an article from the web with the doctor who has been conducting the clinical studies on high dose biotin in multiple sclerosis. https://multiplesclerosisnewstoday.com/2017/05/09/medday-new-phase-3-trial-and-belief-in-biotin-potential-to-treat-progressive-ms-interview-with-frederic-sedel/ My MS doctor had read the notes on the clinical studies and started me on biotin back in December of 2016. With biotin being a…
Going to the neurologist are usually a bittersweet day. I really like my neurologist in the city, she is a wonderful doctor. I honestly couldn’t ask for more compassionate, caring and understanding for MS. That being said, there’s limits to what could be done for me. Since seeing her regularly I’m on my third MS drug that I started back in September, which is Ocrevus. I can say that I was on Rituxan prior to this and the changes only…
This will mark my 11 th month being vegan. December is my year anniversary. I went vegan for health reasons, not for the animal cruelty reason. HOWEVER, the only reason I didn’t go because of animal cruelty is because I could NEVER watch something like that and eat again and I know it. I love animals and if that makes me sound foolish or ignorant to the vegan world, I’m sorry. Anyway, vegan opinions set aside, I made the rash…
I’m very chipper this morning. I slept in. Both dogs let me sleep until 8:00. However, most importantly, my leg strength, or I should say what normal strength they have, came back. I stopped using the bathroom a million times throughout the night and I haven’t had any accidents since Thursday. The chances that I really did have a UTI and needed the antibiotics are pretty good. The doctor even said in two days you’ll know because your MS symptoms…
