Yes, I’m still in the hospital with a pneumonia. Today marks day 12. I can definitely have another blog about what is happening especially since being immune suppressed isn’t helping the situation. Most people look at February 14 as the day of love but it will never be that for me. No, for me it will always be the weekend back in 1998 when I was moving into my new house. Valentine’s weekend and my left foot started to go…
Well I actually thought for a moment I was getting better at home. Then I started having to retreat to my bed earlier and earlier from my big living room excursion. Then getting into my wheelchair started getting me breathless. Fever spiked every day. We all knew something was wrong just didn’t know the best course of action. I had set up a video call with my primary doctor which seemed to prove pointless but actually ended up starting the…
I am still here, barely. I got home from the rehab last Wednesday. It has been rough!! I fell 4 times within the first 12 hours. My strength was significantly worse than I realized. My legs couldn’t hold me up. I realized they didn’t have the strength to push from a seated position to a stand. I was bed bound. This dark cloud came over my world. I refused to talk to anyone. I cried. I am always fighting multiple…
Hello everyone, Happy New Year. I know it seems like I disappeared but unfortunately I had legitimate reasons. I ended up in the hospital last Thursday with Covid and a UTI. It wasn’t really the Covid that put me in the hospital it was the combination of the two infections. I was so weak I was having difficulty sending a text message. I spent New Year’s Eve sleeping in a hospital bed. So much for 2022 being my year. I…
Inconclusive. My bladder test was inconclusive. They said that the sample contained bacteria in their that couldn’t have come from the urine alone. I was thrilled I got urine in the cup. That was a challenge in itself for someone with multiple sclerosis and bladder issues. I even was able to use the little handy wipe they give you before you give the sample. I was so proud of myself that day. So much for that gold star. Thank goodness…
I might have put it all together. A few months ago I treated myself for a possible bladder infection/UTI. Maybe not the smartest thing, but I did. I suspected I had a bladder infection and I had some antibiotics. They weren’t the normal antibiotics usually prescribed for any type of infection in that area, but according to google, it would work. I took them for a total of 5 days. The normal prescription, for the antibiotic I had , is…
I was thinking the other day, what if there was a magic pill to cure multiple sclerosis? What if I can take something that not only stops future disability but cures current disability? What if tomorrow I could actually walk again? I have spent half my life with MS. It is part of my identity, even though I pretend it isn’t. Who am I without my disease? I have this recurring dream that I’m working but still collecting disability. In…
We arrived at Monday once again. I feel like I am on a fast track through these days, weeks, months and years. That is saying something considering most of my days are spent in front of the TV. I am far from highly stimulated most days. Yet the days are going fast. I know I’ve said this many times before. I’m sorry I’m repeating myself. I just find it amazing sometimes. I got to spend a few hours with my…
Well another episode started off an otherwise lovely evening. My mom and stepdad were coming over for dinner and to watch Yellowstone. We missed last week’s episode so we were in for a double feature. It was just about 4:00 when I hung up with my mother. I was getting up to feed my puppies. I didn’t transfer to my wheelchair well. I ended up sliding down to the floor. When I got up I would have taken the increase…
Well yesterday was a visit to my neurologist. I want to thank my pseudo uncle for driving my van. I am not so comfortable driving on the parkways anymore. My first words to my neurologist were “did you miss me?” I have been coming to see him for almost 24 years. I just turned 50, that is almost 1/2 my life. He has been on my multiple sclerosis journey from day 1. He was the neurologist that told me I…
