I got my first infusion of Rituxan on May 29 and received the second September 16. Rituxan is technically not slated for MS as of yet however it’s counterpart Ocrelizumab is its sister that will be coming out in 2017. What this drug does is it knocks out all the B-cells one of your immune fighting cells. I’ve been on just about all of the MS therapy drugs at some point or other except for the newer ones that have…
I remember 18+ years ago being at that neurologist office when my entire left side of my body wasn’t functioning. I couldn’t really walk, I had muscle atrophy, numbness, weakness and gait difficulty. The doctor asked if anyone else in my family had MS. He knew before the MRI was even done. I sat crying in a chair as my mom leaned in front of me and said “everything was going to be ok”. We got in the car to…
OK in my case maybe it’s two days. Yesterday I decided it’s time to put the sadness behind me I put my braces in my sneakers, I put my foot in the sneakers, I tied up my sneakers and I walked out the door. I drove with the braces which was a little difficult but maybe it will take more time or maybe I can’t drive with the braces haven’t decided that one yet. I got to my destination and…
Wow I was going fast into depression the medicine the braces the $130 for shoes I hated the bad phone call with mom. I just was so upset cried for hours straight. It just compounds on you sometimes but now add steroids into the mix and presto recipe for a bad situation. I can’t believe how bad I felt yesterday I really just wanted to give up something that has never been in my nature. I slept all day today…
Ok first mistake I made I stepped on the scale. I have one of the Fitbit Aria scales. It registers my weight by my name. The increase was so great from my Friday weigh in that the scale listed me as a GUEST because how in 2 days could a change that great happen, but it totally did. 12lb increase from Friday morning to Sunday morning. 12lbs THAT’S FREAKING INSANE. I know it’s not real weight it’s from the infusion…
A week in my MS world. I already had my rant of distress this week. So far the week has been better but it’s Thursday and I still have a lot going on. If you have MS maybe you’ve heard of the studies of biotin in high dosages that seem to help people with more progressive stages of the disease. This study which was done in the US is still small but larger ones have been done in other countries….
